Recent content by Emersonsmom

My daughter is 14 months with these same mutations. She has a CF diagnosis because they are both "known" cf causing mutations. She is doing remarkably well and is at the higher end of the growth chart depsite being mildly into the PI range. We also do preventative treatments 2x daily for her...

Regarding cf meds damaging the lungs....can you please be more specific? We are very new to the disease and I appreciate any info. Many thanks!

Hi. My daughter is almost 4 months old and we bounce on an exercise ball (for lung clearance) each time we use the nebulizer. She loves it and keeps her head still for the treatment! Good luck.

Thanks for sharing your story. I will pray for good health for Liam!

Thanks for sharing your story. I will pray for good health for Liam!

Thanks to those of you who have replied. It is nice to talk with people who are in similar circumstances. I am not sure about the H Influenza...other than our doc insisted on an antibiotic immediately. Sorry I can't be of more help, Mistyjo. Does your daughter exhibit symptoms along with the...

Thanks to those of you who have replied. It is nice to talk with people who are in similar circumstances. I am not sure about the H Influenza...other than our doc insisted on an antibiotic immediately. Sorry I can't be of more help, Mistyjo. Does your daughter exhibit symptoms along with the...

Thank you so much your response. We live in North Carolina. How do you know which mutation is the leading mutation? I have read it is often associated with a milder form of cf...when you say it is a strong mutation, do you mean more severe?

Thank you so much your response. We live in North Carolina. How do you know which mutation is the leading mutation? I have read it is often associated with a milder form of cf...when you say it is a strong mutation, do you mean more severe?

Hi. Our daughter was diagnosed a few weeks after birth. Her sweat chloride results were fairly normal, but due to two mutations, she has been given a cf diagnosis. We were completely shocked, as there is no family history. We are still very overwhelmed with all there is to learn. She is three...

Hi. Our daughter was diagnosed a few weeks after birth. Her sweat chloride results were fairly normal, but due to two mutations, she has been given a cf diagnosis. We were completely shocked, as there is no family history. We are still very overwhelmed with all there is to learn. She is three...