Cystic Fibrosis Forum (EXP)

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Recent content by EmilysMomma

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    For people taking Orkambi

    I've never sweated too much and when I do I also have never needed deodorant since there's never been any smell which I always attributed to all the salt in my sweat may be a natural deodorizer.? I have noticed I seem to sweat easier and more now since being on orkambi, I'm a little over 2...
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    For people taking Orkambi

    i don't know but it doesn't really make sense since most people actually gained weight on it and increased bmi. I am hoping it is just an initial side effect. I have already lost at least a pound, thankfully I have a good amount of extra weight that I've already gained in the past year. You...
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    For people taking Orkambi

    I've noticed looser stools as well which is unusual for me.
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    For people taking Orkambi

    I forgot to add that I was more tired the first week also. It seems to be a little easier to cough stuff up also. Sometimes my sinuses seem to drain into the back of my throat on it own such as on days that I would rinse my sinuses and then the rest of the day sometimes hunks would tickle and...
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    For people taking Orkambi

    I am on day 11. I noticed my blood pressure was higher than my usual the first few days but I Thought it was just my nerves and anxiety in starting the medicine. . I usually run low like 90 systolic, even 80's when I fully resting. The first couple days I saw 120-130 systolic (top #, sorry...
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    Post Your Orkambi Updates

    congrats! I have Aetna also and it was approved within days and cvs Caremark sent it overnight.
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    For those taking Orkambi....how has it impacted you?

    i posted a reply to you last night it was on mobile and didn't know how to quote or tag you. It's about 2 posts ago ?
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    For those taking Orkambi....how has it impacted you?

    So happy to hear of your results. I going to start tomorrow and I'm kind of nervous of the "first week" I've been hearing about. It sort of sounds to me like a "purge". My sinuses are terrible so I'm really looking forward to getting easy drainage and less sinus headaches. I see in your profile...
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    Gallbladder surgery

    My surgeon wasn't even a GI specific surgeon just a general surgeon, Jeffry Zern, and I am in Delaware. I agree that you should just find a different surgeon who is more optimistic and comfortable with your situation. I agree with getting it now when you are just off iv's and at your baseline...
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    Gallbladder surgery

    I had my gallbladder out a few years ago when I was around 25. I have a lot of scar tissue also from the ilieostomy surgery also and my surgeon was concerned about it thinking there was a chance he wouldn't be able to get it out laprascopically and might have to be open abdominal surgery...
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    Gestational Diabetes

    Your welcome <img src="i/expressions/face-icon-small-smile.gif" border="0"> Definitely eliminating carbs or low carb diet like a normal pregnant or diabetic patient has to follow is no good for us especially at a time our body is demanding so much more. The only thing i've eliminated with carbs...
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    Gestational Diabetes

    Your welcome <img src="i/expressions/face-icon-small-smile.gif" border="0"> Definitely eliminating carbs or low carb diet like a normal pregnant or diabetic patient has to follow is no good for us especially at a time our body is demanding so much more. The only thing i've eliminated with carbs...
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    Gestational Diabetes

    Your welcome <img src="i/expressions/face-icon-small-smile.gif" border="0"> Definitely eliminating carbs or low carb diet like a normal pregnant or diabetic patient has to follow is no good for us especially at a time our body is demanding so much more. The only thing i've eliminated with carbs...
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    Gestational Diabetes

    I had gestational while pregnant, diagnosed after 3 hour test, with no known cfrd before pregnancy. My inexperienced with cf OB had me try doing a regular low carb diet and I started to lose weight after only a week or 2 and my sugar was still high so I had to start insulin and by that time my...
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    Gestational Diabetes

    I had gestational while pregnant, diagnosed after 3 hour test, with no known cfrd before pregnancy. My inexperienced with cf OB had me try doing a regular low carb diet and I started to lose weight after only a week or 2 and my sugar was still high so I had to start insulin and by that time my...
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