Cystic Fibrosis Forum (EXP)

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Recent content by ess922

  1. E

    authenticity?

    don't want to interject too much as i think the discussion so far is a good one. but just to clarify a couple of things: i was not at all suggesting that vital information be posted publicly. just that the administrators have it in a confidential file (hard copy). and they can simply indicate...
  2. E

    authenticity?

    don't want to interject too much as i think the discussion so far is a good one. but just to clarify a couple of things: i was not at all suggesting that vital information be posted publicly. just that the administrators have it in a confidential file (hard copy). and they can simply indicate...
  3. E

    authenticity?

    don't want to interject too much as i think the discussion so far is a good one. but just to clarify a couple of things: i was not at all suggesting that vital information be posted publicly. just that the administrators have it in a confidential file (hard copy). and they can simply indicate...
  4. E

    authenticity?

    hoping to spark an open, healthy and productive discussion: personally speaking, i found this site at a time when my health was not the best and i was looking for support. i don't post often and i read less and less because, sadly, i have come to wonder how supportive an unsecured cf forum can...
  5. E

    authenticity?

    hoping to spark an open, healthy and productive discussion: personally speaking, i found this site at a time when my health was not the best and i was looking for support. i don't post often and i read less and less because, sadly, i have come to wonder how supportive an unsecured cf forum can...
  6. E

    authenticity?

    hoping to spark an open, healthy and productive discussion: personally speaking, i found this site at a time when my health was not the best and i was looking for support. i don't post often and i read less and less because, sadly, i have come to wonder how supportive an unsecured cf forum can...
  7. E

    NYC CF Centers..where do you go??

    Just want to add a second to Christian's comments! I am a huge fan of Dr. Walker and the entire St. Vincent's CF Center team! They are fabulous. Dedicated. Caring. Aggressive in their treatment of CF and outstanding advocates for their patients. But its such a personal decision... You've...
  8. E

    NYC CF Centers..where do you go??

    Just want to add a second to Christian's comments! I am a huge fan of Dr. Walker and the entire St. Vincent's CF Center team! They are fabulous. Dedicated. Caring. Aggressive in their treatment of CF and outstanding advocates for their patients. But its such a personal decision... You've...
  9. E

    NYC CF Centers..where do you go??

    Just want to add a second to Christian's comments! I am a huge fan of Dr. Walker and the entire St. Vincent's CF Center team! They are fabulous. Dedicated. Caring. Aggressive in their treatment of CF and outstanding advocates for their patients. But its such a personal decision... You've...
  10. E

    working with PICC

    I'm dealing with this very issue right now. Got my PICC last week. Missing work this past week was ok as it was a short, holiday week. But now I'm trying to decide what to do about going back (I normally work part-time just 2 days per week so in some ways that makes it seem more feasible to...
  11. E

    working with PICC

    I'm dealing with this very issue right now. Got my PICC last week. Missing work this past week was ok as it was a short, holiday week. But now I'm trying to decide what to do about going back (I normally work part-time just 2 days per week so in some ways that makes it seem more feasible to...
  12. E

    working with PICC

    I'm dealing with this very issue right now. Got my PICC last week. Missing work this past week was ok as it was a short, holiday week. But now I'm trying to decide what to do about going back (I normally work part-time just 2 days per week so in some ways that makes it seem more feasible to...
  13. E

    Melissa is in the Slammer

    Melissa, Hope everything is going as well as possible for you at St. V's and that you feel well very, very soon! And, to echo what Christian said, hope you are comforted by knowing that you've got in your corner, a cf medical team that truly cares about you. dr w and the 'gang' and will do...
  14. E

    Melissa is in the Slammer

    Melissa, Hope everything is going as well as possible for you at St. V's and that you feel well very, very soon! And, to echo what Christian said, hope you are comforted by knowing that you've got in your corner, a cf medical team that truly cares about you. dr w and the 'gang' and will do...
  15. E

    Melissa is in the Slammer

    Melissa, Hope everything is going as well as possible for you at St. V's and that you feel well very, very soon! And, to echo what Christian said, hope you are comforted by knowing that you've got in your corner, a cf medical team that truly cares about you. dr w and the 'gang' and will do...
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