Recent content by fhayden

I know why I'm not getting many response and that's because not many transplant centers are giving Kalydeco to their patients. I just got off the phone with several transplant centers. None are giving Kalydeco to their CF patients. Some didn't even know what Kalydeco was. I think this med is so...

I know why I'm not getting many response and that's because not many transplant centers are giving Kalydeco to their patients. I just got off the phone with several transplant centers. None are giving Kalydeco to their CF patients. Some didn't even know what Kalydeco was. I think this med is so...

Wow, google is powerful. Yup, I posted the benefits for SSDI not SSI. You do lose $1 for every $2 you make on SSI. I work and still have my benefits. But I do agree that the rules are different for people on SSI/SSDI. But I do see where the rules about SSDI are stated...

Wow, google is powerful. Yup, I posted the benefits for SSDI not SSI. You do lose $1 for every $2 you make on SSI. I work and still have my benefits. But I do agree that the rules are different for people on SSI/SSDI. But I do see where the rules about SSDI are stated...

You can work part time. The limit depends on your state. For example, in Florida I can work and make up to $1000 per month. If you make over $1000 per month in Florida you will lose you cash benefits but may be able to keep your medical benefits. If I make more than $720 per month it will be...

You can work part time. The limit depends on your state. For example, in Florida I can work and make up to $1000 per month. If you make over $1000 per month in Florida you will lose you cash benefits but may be able to keep your medical benefits. If I make more than $720 per month it will be...

First, I'm 42 yrs old and wasn't diagnosed unil 2005. I was diagnosed with blood tests at UPMC and was told I have CFRD. My pancrease still makes some insulin and my sensitivies flucutate. I chose to use the pump because I got too many lows using lantus or pills. There is a doctor who is the...

First, I'm 42 yrs old and wasn't diagnosed unil 2005. I was diagnosed with blood tests at UPMC and was told I have CFRD. My pancrease still makes some insulin and my sensitivies flucutate. I chose to use the pump because I got too many lows using lantus or pills. There is a doctor who is the...

Well, I've got CFRD. My local endo insists I have type 1 so I use an insulin pump. I'm going to start taking Kalydeco soon. I've already received my shipment of Kalydeco in the mail but haven't started taking it yet.. Because I've already receive a double lung transplant because of CF I have to...

Well, I've got CFRD. My local endo insists I have type 1 so I use an insulin pump. I'm going to start taking Kalydeco soon. I've already received my shipment of Kalydeco in the mail but haven't started taking it yet.. Because I've already receive a double lung transplant because of CF I have to...

I actually have CFRD since 2005 and I'd love nothing more then to take a pill and watch it go far far away <img src="i/expressions/face-icon-small-smile.gif" border="0"> Frank

I actually have CFRD since 2005 and I'd love nothing more then to take a pill and watch it go far far away <img src="i/expressions/face-icon-small-smile.gif" border="0"> Frank

I'm wondering for those taking Kalydeco if you've seen improvements with CFRD? Thanks, Frank

I'm wondering for those taking Kalydeco if you've seen improvements with CFRD? Thanks, Frank

Hi. Thanks for the reply. Unfortunately, I developed CFRD in 2005. Not bad considering I'm 42 yrs old and didn't have to deal with it most of my life. I will say for me CFRD is one reason I even considered taking it. I was thinking if it helps with digestion maybe it could help with CFRD too. No...