Cystic Fibrosis Forum (EXP)

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Recent content by foreverworshiphim

  1. F

    Had the sweat test and blood work

    They told me that the number was less than ten but did not give me a specific number. She has had reflux since she was born. She has had two fundoplications for the reflux with the last being in Nov of '09. I went back over her records since Sept of 2007 and her weight has varied from 39lbs to...
  2. F

    Had the sweat test and blood work

    They told me that the number was less than ten but did not give me a specific number. She has had reflux since she was born. She has had two fundoplications for the reflux with the last being in Nov of '09. I went back over her records since Sept of 2007 and her weight has varied from 39lbs to...
  3. F

    Had the sweat test and blood work

    They told me that the number was less than ten but did not give me a specific number. She has had reflux since she was born. She has had two fundoplications for the reflux with the last being in Nov of '09. I went back over her records since Sept of 2007 and her weight has varied from 39lbs to...
  4. F

    Had the sweat test and blood work

    My daughter finally had her sweat test and it came back negative. So now we wait for the blood work to come back. I finally (after fighting tooth and nail) got my doctor to agree with sending it to Ambry. I am feeling a bit more confident with the negative sweat test, however the docs still have...
  5. F

    Had the sweat test and blood work

    My daughter finally had her sweat test and it came back negative. So now we wait for the blood work to come back. I finally (after fighting tooth and nail) got my doctor to agree with sending it to Ambry. I am feeling a bit more confident with the negative sweat test, however the docs still have...
  6. F

    Had the sweat test and blood work

    My daughter finally had her sweat test and it came back negative. So now we wait for the blood work to come back. I finally (after fighting tooth and nail) got my doctor to agree with sending it to Ambry. I am feeling a bit more confident with the negative sweat test, however the docs still have...
  7. F

    We are finally getting to do the sweat test and full panel

    Thank you so much for the clarification! I will definitely pass this along to the ENT doc. In fact I think I will call her pulmo back tomorrow and fully explain why I want the Ambry done.
  8. F

    We are finally getting to do the sweat test and full panel

    Thank you so much for the clarification! I will definitely pass this along to the ENT doc. In fact I think I will call her pulmo back tomorrow and fully explain why I want the Ambry done.
  9. F

    We are finally getting to do the sweat test and full panel

    Thank you so much for the clarification! I will definitely pass this along to the ENT doc. In fact I think I will call her pulmo back tomorrow and fully explain why I want the Ambry done.
  10. F

    We are finally getting to do the sweat test and full panel

    Thank you so much for the clarification! I will definitely pass this along to the ENT doc. In fact I think I will call her pulmo back tomorrow and fully explain why I want the Ambry done.
  11. F

    We are finally getting to do the sweat test and full panel

    Thank you so much for the clarification! I will definitely pass this along to the ENT doc. In fact I think I will call her pulmo back tomorrow and fully explain why I want the Ambry done.
  12. F

    We are finally getting to do the sweat test and full panel

    The sweat test is being done at a certified CF clinic. When I spoke with my daughter's nurse today she said that the full panel they order should test all 1500 mutations. I am definitely going to ask the ENT about it though. Her pulmo order it but we are following it with the ENT. ( her pulmo...
  13. F

    We are finally getting to do the sweat test and full panel

    The sweat test is being done at a certified CF clinic. When I spoke with my daughter's nurse today she said that the full panel they order should test all 1500 mutations. I am definitely going to ask the ENT about it though. Her pulmo order it but we are following it with the ENT. ( her pulmo...
  14. F

    We are finally getting to do the sweat test and full panel

    The sweat test is being done at a certified CF clinic. When I spoke with my daughter's nurse today she said that the full panel they order should test all 1500 mutations. I am definitely going to ask the ENT about it though. Her pulmo order it but we are following it with the ENT. ( her pulmo...
  15. F

    We are finally getting to do the sweat test and full panel

    The sweat test is being done at a certified CF clinic. When I spoke with my daughter's nurse today she said that the full panel they order should test all 1500 mutations. I am definitely going to ask the ENT about it though. Her pulmo order it but we are following it with the ENT. ( her pulmo...
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