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Recent content by foxalive

  1. F

    R334w

    I have Cepacia for about six years. At first condition deteriorated badly, gradually has stabilised. But she never got so still. Now it is relatively stable. I tried to get rid it, but it did not work out. In Russia, the bad quality of care.
  2. F

    R334w

    Nocode, I have b.cepacia in my lungs. What kind of bacteria in your lungs?
  3. F

    R334w

    Hi, nocode! I hope in your country Kalydeco is available and you can give it a try! Could you clarify what you have second mutation? You wrote - it does not seem to exist :) What an infection in your lungs?
  4. F

    Treatment B. Cepacia

    Have you tried Fluimucil antibiotic IT? It consists of an antibiotic (Thiamphenicol, glycinate acetylcysteinate). I have B.Cepacia many years, this drug helps me.
  5. F

    R334w

    Hello everyone :)Thank you for having created this topic!I was so glad to find it! This is an incredibly great to meet you here :)I’m 32 y.o. I have r334w-f508del. And B.Cepacia many years in my lungs.I am from Russia, sorry for my English, it’s so poor.
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