Recent content by Georgiagirl

Thank you, bharison. Yes, I used to be on tobra flushes for 3 year, every 4-6 weeks with ENT for my sinuses. Then I was given Tobra IV and let's just say, my body protested greatly. I tried Tobi two different times and ended up with the same symptoms after a 14 day cycle: heavy limbs and trunk...

I have used the inhaler for almost a year. I find it not only thins my secretions & makes vest therapy more effective, but is also a great alternative when hypertonic is not feasible.

Thank you, Autumn for your reply. It helps to learn of others experience. Interesting about the 2 week cycle, perhaps that could be a solution to keep me from getting so congested on the 3rd off week. Thank you again for your suggestions. I am finding no information of ringing side effect tide...

Has anyone been on Cayston for an extended amount of time and are experiencing any ringing in their ears? I've been on Cayston for 2.5 years on a 28 day on and 28 day off schedule. I've also read of others that have a different dose and/or different length of time for dose. I would hope to have...

Thanks for the tips. I actually hooked the hose to the bipap machine & let it run to dry up remaining droplets. Will just have to remember it will be an "all day" project. Good thing is it only has to be once a week (for hoses & headband).:)

I have taken various alternative remedies over the years at different intervals: olive leaf (strengthen immune system, help fight fungus & yeast); amino acids (many benefits, mainly thin mucus & support various organs); tea tree oil steams; himalayan salt inhaler; dessicated liver capsules (B's...

What ways do you dry the tubing(hoses). Anywhere I read it states "air dry". That can take a considerable amount of time! I rinsed them at 10 am this morning & I still see droplets at 3pm! Any tips would be much appreciated.:)

Yes, happened to me numerous times. Cannot tolerate bleach or ammonia products. I dilute tea tree oil or use vinegar & baking soda or I am not bothered by citrus. We also use fragrance-free detergent & free dryer sheets.

Thank you for your responses. I am sorry you have had bad side effects with the meds which led to loss. I have not tolerated IV Tobra for years and tried Tobi twice with the same side effect: numbness. I have been on Cayston for two years, I am really hoping it is not from that. Waiting to hear...

Does anyone else experience ringing in their ears from coughing and using the vest?

I started Cayston in Oct. of last year. I am a carrier of the b cepacia, but it has not shown in my culture for 1.5 years.

Thank you Margaret, I did not know there was a Transplant section until after I had posted.  = )<br>

Thank you Margaret, I did not know there was a Transplant section until after I had posted. = )<br>

Thank you Margaret, I did not know there was a Transplant section until after I had posted. = )<br>

Hello everyone, <br>I have found all of your input very helpful and interesting.  I am not saying that I am ruling a transplant out completely, I am just leaning to the side of "no" more than "yes". Thank you to everyone's responses.  As far as my health, I am more moderate than any other...