Recent content by HelpCureCF

I have a 2.5 year old daughter who is SUCH a picky eater....and she eats like a bird...it is so incredibly frustrating...every single day, every single meal is hard for me to get through...I could've written your post... She is however in the 60th percentile for weight because of my secret...

I have a 2.5 year old daughter who is SUCH a picky eater....and she eats like a bird...it is so incredibly frustrating...every single day, every single meal is hard for me to get through...I could've written your post... She is however in the 60th percentile for weight because of my secret...

I have a 2.5 year old daughter who is SUCH a picky eater....and she eats like a bird...it is so incredibly frustrating...every single day, every single meal is hard for me to get through...I could've written your post... She is however in the 60th percentile for weight because of my secret...

Have you looked into PGD? We are thinking about it....We have a 4 year old w/o CF...a 22 month old w/CF...I got my tubes tied during my c-section with my 22 month old....was afraid to take the chance...(we found out during my last pregnancy that we were carriers) Soooooooo...if we want to try...

mockingbird, Thanks for your reply. I agree with you that people are different, although...I thought that PA is PA and it would be nice if there was one right wayb to treat it and get rid of it...love the art work

amy....you mentioned sputum culture..my daughter gets throat cultures ...is that the same thing??? She doesn't cough or produce sputum

Thanks Carrie. Looks like your clinic does things the way my friends clinic does. So confusing and I just want to do the "right" thing............PLEASE kEEP the responses coming !!!!

wow Amy !! You weren't kidding....your opinion was nothing like either of ours....thank you so much for responding. You would do a broncoscope on a 21 month old that cultured PA once and has no symptoms at all? interesting......

What does everyone else do? My daughter who is 21 months old, just cultured PA for the 1st time last month. She just finished 28 days of Tobi/Cipro. On day 29 we did a repeat culture which we are waiting for the results..(should hear on Monday) It was non mucoid..if that helps.... Her doc...

I too have a 19 month old daughter with cf. I've been singing the praises of Boost Pudding. It's 240 calories. My daughter eats 2 a day. They come in Chocolate, Vanilla and Butterscotch. You can ask your grocery store to order it for you, or do what we do and have Taget order it (the...

We just found out that our insurance company is only going to pay $2500.00 toward The Vest (which costs $16,425.00) and that we are responsible for the rest. Just curious as to what everyone else's experience has been. Thanks

My daughter is 19 months old and got the vest a month ago.... I told the vest company that I wanted them to send it to me first (they wanted to bring it the day of training..) I wanted it in the house for a few days to get her used to it...first we put it on her cabbage patch doll....then...

here are a few suggestions for you... Boost Pudding (240 calories) Pediasure Shredded cheddar cheese Easy Mac (in the cup) Ramen noodles...after it's cooked...I drain all the water...and mix the flavor packet with the noodles Hope this helps...we struggle with this from time to time...my...

sorry...my son hit that "405" at the end of my post...sticky little fingers LOL

Sharon, I wouldn't feel comfortable waiting to give her enzymes....she almsot always wants her pediasure as soon as she sits down....and liquid runs right through...so she needs her enzymes for that, no? My husband is a physician and he insists that I give her enzymes first for that...