Recent content by hhhhhmom

Hi Everyone, No, I'm really not a nut (in that I'm not trying to "fit" my son's symptoms into cf--I know that it would be unlikely w/o a positive sweat test). . . BUT, in researching bronchiectases and primary immunodeficiency diseases, which my son has, I found an interesting article which...

Hi Everyone, No, I'm really not a nut (in that I'm not trying to "fit" my son's symptoms into cf--I know that it would be unlikely w/o a positive sweat test). . . BUT, in researching bronchiectases and primary immunodeficiency diseases, which my son has, I found an interesting article which...

Hi again, This is the best site! Alyssa, I AM going to insist on full genetic testing or else I will wonder forever whether it could be cf. I just wanted to point out immunodefficient problems as a thought for people still needing answers. Anonymous, my son had tests recently that showed...

Hi again, This is the best site! Alyssa, I AM going to insist on full genetic testing or else I will wonder forever whether it could be cf. I just wanted to point out immunodefficient problems as a thought for people still needing answers. Anonymous, my son had tests recently that showed...

Hi, I don't know why I keep checking this site other than the comfort (maybe that's a bizarre word for it) of knowing that there are other parents going through VERY similar situations. My son has all the symptoms/signs of cf other than weight issues. He has never been underweight but has...

Hi, I don't know why I keep checking this site other than the comfort (maybe that's a bizarre word for it) of knowing that there are other parents going through VERY similar situations. My son has all the symptoms/signs of cf other than weight issues. He has never been underweight but has...

Hi, I just called the cf clinic and whatever my son has isn't cf--his sweat test was 16. As relieved as I am, I'm also a little disappointed that ANOTHER hopeful diagnosis has come and gone. With each new negative test, they are testing for worse and worse diseases. Not that I thought cf...

Hi, I just called the cf clinic and whatever my son has isn't cf--his sweat test was 16. As relieved as I am, I'm also a little disappointed that ANOTHER hopeful diagnosis has come and gone. With each new negative test, they are testing for worse and worse diseases. Not that I thought cf...

Hi Jane, I know its scary, and it's our parental nature to worry about our kids, but the more you do, the less they do. If my kids don't eat right or "forget" to take a shot, they pay for it for usually a couple of days. BUT, I have allowed them to find this out for themselves and it's a lot...

Hi Jane, I know its scary, and it's our parental nature to worry about our kids, but the more you do, the less they do. If my kids don't eat right or "forget" to take a shot, they pay for it for usually a couple of days. BUT, I have allowed them to find this out for themselves and it's a lot...

Hi Jane, I don't know much about cf treatment, but I have 2 boys with Type I diabetes. One is 14 in a couple of weeks and one is 9. I've always made it very clear to my sons that it is their body, their choice--on certain issues. It isn't negotiable for them to take their shots, eat right...

Hi Jane, I don't know much about cf treatment, but I have 2 boys with Type I diabetes. One is 14 in a couple of weeks and one is 9. I've always made it very clear to my sons that it is their body, their choice--on certain issues. It isn't negotiable for them to take their shots, eat right...

Hi, Everyone likes to hear that they were right. Well, everyone was right about having the sweat test at a cf accredited facility. My son had one last week (borderline) and one today and it didn't seem like he was even having the same test because the one today was so much different! Thanks...

Hi, Everyone likes to hear that they were right. Well, everyone was right about having the sweat test at a cf accredited facility. My son had one last week (borderline) and one today and it didn't seem like he was even having the same test because the one today was so much different! Thanks...

Hi, Thanks for the posts. We are going (hopefully tomorrow) to have the sweat test done at a cf place. Another question, are ear infections a problem related to cf? Thanks,