Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Recent content by hotrodsmom

  1. H

    update on genetic test

    Patrick was tested for all 1500 mutations, not sure if it was the Ambry test. He is still getting albuteral treatments and Pulmacort twice a day w/the vest. The Dr did want him on pulmozyme but the insurace will not ok it because he has not been diagnosed w/CF. What are the chances he will get...
  2. H

    update on genetic test

    Patrick was tested for all 1500 mutations, not sure if it was the Ambry test. He is still getting albuteral treatments and Pulmacort twice a day w/the vest. The Dr did want him on pulmozyme but the insurace will not ok it because he has not been diagnosed w/CF. What are the chances he will get...
  3. H

    update on genetic test

    Patrick was tested for all 1500 mutations, not sure if it was the Ambry test. He is still getting albuteral treatments and Pulmacort twice a day w/the vest. The Dr did want him on pulmozyme but the insurace will not ok it because he has not been diagnosed w/CF. What are the chances he will get...
  4. H

    update on genetic test

    Patrick was tested for all 1500 mutations, not sure if it was the Ambry test. He is still getting albuteral treatments and Pulmacort twice a day w/the vest. The Dr did want him on pulmozyme but the insurace will not ok it because he has not been diagnosed w/CF. What are the chances he will get...
  5. H

    update on genetic test

    Patrick was tested for all 1500 mutations, not sure if it was the Ambry test. <br /> <br />He is still getting albuteral treatments and Pulmacort twice a day w/the vest. The Dr did want him on pulmozyme but the insurace will not ok it because he has not been diagnosed w/CF. <br /> <br />What are...
  6. H

    update on genetic test

    We found out this week that my son does NOT have CF <img src="i/expressions/face-icon-small-smile.gif" border="0"> which is great news. I just wish we knew what is going on with him. The test for PCD also came back negative. I am glad I found this sight it was very helpful.
  7. H

    update on genetic test

    We found out this week that my son does NOT have CF <img src="i/expressions/face-icon-small-smile.gif" border="0"> which is great news. I just wish we knew what is going on with him. The test for PCD also came back negative. I am glad I found this sight it was very helpful.
  8. H

    update on genetic test

    We found out this week that my son does NOT have CF <img src="i/expressions/face-icon-small-smile.gif" border="0"> which is great news. I just wish we knew what is going on with him. The test for PCD also came back negative. I am glad I found this sight it was very helpful.
  9. H

    update on genetic test

    We found out this week that my son does NOT have CF <img src="i/expressions/face-icon-small-smile.gif" border="0"> which is great news. I just wish we knew what is going on with him. The test for PCD also came back negative. I am glad I found this sight it was very helpful.
  10. H

    update on genetic test

    We found out this week that my son does NOT have CF <img src="i/expressions/face-icon-small-smile.gif" border="0"> which is great news. I just wish we knew what is going on with him. <br /> <br />The test for PCD also came back negative. <br />I am glad I found this sight it was very helpful.
  11. H

    How do you work your treatments around school?

    my son gets on the bus @ 7:00AM and gets off the bus by about 4:00 during the school year. He dose Albuteral 3 times a day W/vest, and also dose pulmicort 2 times a day. Dr would like us to use Pulmazyme, but my son is waiting on genetic testing. So w/out a CF diagnoses our insurance will not ok...
  12. H

    How do you work your treatments around school?

    my son gets on the bus @ 7:00AM and gets off the bus by about 4:00 during the school year. He dose Albuteral 3 times a day W/vest, and also dose pulmicort 2 times a day. Dr would like us to use Pulmazyme, but my son is waiting on genetic testing. So w/out a CF diagnoses our insurance will not ok...
  13. H

    How do you work your treatments around school?

    my son gets on the bus @ 7:00AM and gets off the bus by about 4:00 during the school year. He dose Albuteral 3 times a day W/vest, and also dose pulmicort 2 times a day. Dr would like us to use Pulmazyme, but my son is waiting on genetic testing. So w/out a CF diagnoses our insurance will not ok...
  14. H

    How do you work your treatments around school?

    my son gets on the bus @ 7:00AM and gets off the bus by about 4:00 during the school year. He dose Albuteral 3 times a day W/vest, and also dose pulmicort 2 times a day. Dr would like us to use Pulmazyme, but my son is waiting on genetic testing. So w/out a CF diagnoses our insurance will not ok...
  15. H

    How do you work your treatments around school?

    my son gets on the bus @ 7:00AM and gets off the bus by about 4:00 during the school year. <br />He dose Albuteral 3 times a day W/vest, and also dose pulmicort 2 times a day. Dr would like us to use Pulmazyme, but my son is waiting on genetic testing. So w/out a CF diagnoses our insurance will...
Top