Cystic Fibrosis Forum (EXP)

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Recent content by jamiebug

  1. J

    Random questions about transplant

    I am almost 5 years post transplant and I am not technically "diabetic" I control my blood sugars with diet and exercise. I weighed 88 lbs before my transplant (I'm 5'0") and I dropped down to 68 lbs after surgery. Within 9 months I weighed well over 100 lbs. I currently weigh 110 lbs. You will...
  2. J

    Out of state transplants because of b. cepacia?

    I have had Cepacia for over 21 years. I was diagnosed with it when I was just 13 yrs old. In 2007 I was VERY sick and I was never given the "You need to look into a lung transplant" talk because it was a well known fact that Cepacia disqualified me as a candidate. I couldn't believe that there...
  3. J

    transplant questions

    My transplant evaluation was done at a hospital 2000 miles from where I lived. I was from Idaho and evaluated and transplanted in Pittsburgh, PA. No other hospital wanted to transplant me cuz I cultured Cepacia. . .So my evaluation process took about 5 days of appointments and testing. It wasn't...
  4. J

    transplant questions

    My transplant evaluation was done at a hospital 2000 miles from where I lived. I was from Idaho and evaluated and transplanted in Pittsburgh, PA. No other hospital wanted to transplant me cuz I cultured Cepacia. . .So my evaluation process took about 5 days of appointments and testing. It wasn't...
  5. J

    Adjusting to a new life

    First off. . .welcome to your new life <img src="i/expressions/face-icon-small-smile.gif" border="0"> I am just over 4 years post transplant. I was put on a ventilator THEN listed and got new lungs in just 3 days later. SO in reality I pretty much had no time in between. lol Recovery for me was...
  6. J

    Adjusting to a new life

    First off. . .welcome to your new life <img src="i/expressions/face-icon-small-smile.gif" border="0"> I am just over 4 years post transplant. I was put on a ventilator THEN listed and got new lungs in just 3 days later. SO in reality I pretty much had no time in between. lol Recovery for me was...
  7. J

    Gaining weight tips?

    It's not just about the calories. . .I always wieghed close to my "ideal" weight through most of my teen/young adulthood. I am 4'11" and I weighed 96-100 lbs most of the time. There is one thing no one mentioned. . .muscle! Muscle wieghs more fat and it will give you some size. I spent time at...
  8. J

    Gaining weight tips?

    It's not just about the calories. . .I always wieghed close to my "ideal" weight through most of my teen/young adulthood. I am 4'11" and I weighed 96-100 lbs most of the time. There is one thing no one mentioned. . .muscle! Muscle wieghs more fat and it will give you some size. I spent time at...
  9. J

    Need help!!!!

    That is pretty normal. When I turned 18 I had to appeal the decision and the state appointed me a lawyer who helped me and my case was reviewed. . .I was able to qualify as an adult. I think it's pretty standard, I mean it's not like you're get better as you get older. It's not hard to prove...
  10. J

    Need help!!!!

    That is pretty normal. When I turned 18 I had to appeal the decision and the state appointed me a lawyer who helped me and my case was reviewed. . .I was able to qualify as an adult. I think it's pretty standard, I mean it's not like you're get better as you get older. It's not hard to prove...
  11. J

    B cepacia - nanoemulsion solution

    If you're still interested in a lung transplant you can contact UPMC (University of Pittsburgh Medical Center) I am CF/Cepcacia and they transplanted me 4 years ago. I have referred other Cepacia patients to them and they have also received lung transplants. <br><br>I hope you're right about a...
  12. J

    B cepacia - nanoemulsion solution

    If you're still interested in a lung transplant you can contact UPMC (University of Pittsburgh Medical Center) I am CF/Cepcacia and they transplanted me 4 years ago. I have referred other Cepacia patients to them and they have also received lung transplants. <br><br>I hope you're right about a...
  13. J

    B cepacia - nanoemulsion solution

    If you're still interested in a lung transplant you can contact UPMC (University of Pittsburgh Medical Center) I am CF/Cepcacia and they transplanted me 4 years ago. I have referred other Cepacia patients to them and they have also received lung transplants. <br><br>I hope you're right about a...
  14. J

    Readers Digest Contests~

    Hey everyone~<br><br>My CF/Transplant story is in the running and is on the Editors Pick list in a Readers Digest contest. I need as many people that can to PLEASE VOTE for my story in Facebook. It's easy and you can vote once every day. Voting ends on Nov 15th so just a few more days to vote...
  15. J

    Readers Digest Contests~

    Hey everyone~<br><br>My CF/Transplant story is in the running and is on the Editors Pick list in a Readers Digest contest. I need as many people that can to PLEASE VOTE for my story in Facebook. It's easy and you can vote once every day. Voting ends on Nov 15th so just a few more days to vote...
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