Recent content by Jana

From some things I've read, it sounds like joint pain is not uncommon in cf and can be caused by several different issues. However, it is also a side effect of quinolone drugs such as cipro or levaquin. While that should go away in time, it can take a while. Hope your knees feel better soon!

I've read that also and believe it's because a microwave doesn't necessarily heat evenly--you know how microwaved food tends to have cold and hot spots. Killing bacteria requires a temperature held at the required level uninterrupted for a certain period of time. I've also heard the microwave...

I have the same two mutations as your son. Although mutations aren't everything in determining outcome, it is good news because 2789+5G>A is associated with slower progression of disease since the body produces some working proteins. I'm 40 and by CF standards am fairly healthy, with lung...

You should be aware that there could be two separate issues involved, and some of these posts seem to be confusing them. Cipro can cause joint and muscle pain, which can be severe. Although it's uncomfortable, it's not a major issue because these go away, as someone mentioned, once off the...

I have that mutation, but it's not in my profile. I didn't find out about it until last year. However, Denver is a bit too far for me as well!

I did have that problem once when I'd been taking Cipro/Levaquin a lot. It was something I had never experienced before, and when I described to my doctor how I was feeling, she immediately said it was from the medication. You definitely need to tell your doctor, especially given the other...

That was a pretty good antibiotic for me. I get body aches and fatigue with pretty much all of them as well as a slight fever at times. I've stopped taking ceftaz for now because of a problem with severe numbness/tingling in my feet and hands which eventually shot up my legs and arms...

I had the same problem for several years--low grade fever that just randomly came and went. There was a thread about it on here before, and a number of people mentioned they had the same thing. Apparently it's one of those common cf problems. Strangely, it stopped for me a year or two ago...

I've had periodic problems with hypoglycemia over the last year. It's strange, though, as it seems to go in cycles. At times, my blood sugar is a little high instead. Some reading about it indicated this is not a terribly uncommon problem with cf. I've also gone to trying to eat more...

Thanks for the information. I didn't realize the drug was indicated at all for my mutations but will look into it. Unfortunately, Denver probably won't work for me since it would be quite a commute!

I have this mutation as well as DF508. Back when they first did genetic testing on me, this mutation was still unknown, so I just found out about it when the testing was done again in order to see if I would be eligible for Kalydeco. In reading about it, I learned that it seems to be...

I'm sorry to hear that. Thanks for letting us know.

When you say it that way, I remembered once having that kind of issue as well, with tingling and sometimes shooting pain through my arm. They told me it was probably because a nerve was irritated during insertion and would take a while to get over it. It lasted a while but did eventually go...

Amy, I definitely think you should see someone at a CF clinic!

By the way, the nerve pain would concern me more. I was told if a line stayed against a nerve for too long it could cause permanent nerve damage. Are you sure you are talking about nerve pain, though? When I had a line against a nerve (one they were trying to put in--they ended up pulling it...