Recent content by janicetriplets

Thanks for all the information! i've never been offered Kalydeco but I will mention this to my docs on my next visit. Right now i'm on a clinical trial for Arikace, i'm also on imipenem and azythro. My FEV1 las week was 71%. When I was diagnosed almost 8 years ago it was 85-90%. i was reading...

hi! I have 2789 +5g>A oh didn't it was different... Iwas diagnosed with cf when I was 32 (I'm turning 40 in january) I did not have lung issues until I caught mac. abscessus and started with hemoptisis when I was 31. I had stomach problems all my life , pain , pancreatitis and severe...

I have your mutation!

I have the same mutations, I was diagnosed at 32 (I'm 39) I always had severe pancreatitis starting when I was 27 but suffered with stomach pain all my life. I'm still pancreatic sufficient. I never had issues with my lungs till i was 16 that i started coughing a littlle bit and I was diagnosed...

Teri, from the very beginning of my pregnancy I was with nauseas, I was so dizzie that I could not even walk. My Doc gave me reglan but didn't work for me and started vomiting so they switched to zofran 3 times during the day and phenegan at night until I reached 20 weeks. From beginning to the...

Hi Lauren! yes I was encouraged to reduce the pregnancy to a singleton...my cf doctors told me i would pass away if i continue the pregnancy with triplets and they made me an appt in New York with an specialist in reduction (I'm from Miami)but I had to do it when the babies were 12 weeks...I was...

Hi Lauren! yes I was encouraged to reduce the pregnancy to a singleton...my cf doctors told me i would pass away if i continue the pregnancy with triplets and they made me an appt in New York with an specialist in reduction (I'm from Miami)but I had to do it when the babies were 12 weeks...I was...

Hi Lauren! yes I was encouraged to reduce the pregnancy to a singleton...my cf doctors told me i would pass away if i continue the pregnancy with triplets and they made me an appt in New York with an specialist in reduction (I'm from Miami)but I had to do it when the babies were 12 weeks...I was...

hello all! I was pregnant with triplets and they were born in december and my FEV1 pre- pregnancy was 71% FEV1 during pregnancy - around 69% FEV1 post pregnancy - 69% FEV1 after 6 months - 74% but had to be hospitalized at 24 weeks because of hemoptisis and continued being at the hospital...

hello all! I was pregnant with triplets and they were born in december and my FEV1 pre- pregnancy was 71% FEV1 during pregnancy - around 69% FEV1 post pregnancy - 69% FEV1 after 6 months - 74% but had to be hospitalized at 24 weeks because of hemoptisis and continued being at the hospital...

hello all! I was pregnant with triplets and they were born in december and my <br />FEV1 pre- pregnancy was 71% <br />FEV1 during pregnancy - around 69% <br />FEV1 post pregnancy - 69% <br />FEV1 after 6 months - 74% <br />but had to be hospitalized at 24 weeks because of hemoptisis and...

i was on it the whole pregnancy and they also never told me to stop. ( i had triplets in december)

i was on it the whole pregnancy and they also never told me to stop. ( i had triplets in december)

i was on it the whole pregnancy and they also never told me to stop. ( i had triplets in december)

I'm a dentist...and I've been in the dental field for 20 years. I was diagnosed 6 years ago...I love dentistry but if I knew I had cf before I would have chosen another career...and be in less contact with infections. good luck with your choice!