Recent content by jchelle

no meds and his pfts were at 46% late last month. his breathing is getting worse and he cant sleep/lay down nothing. its not anxiety at all, hes barely able to hold food down much lately.

he is constantly in pain, blood or no blood...he has gone to the er and they give him a breathing treatment, send him home n tell him to go see his CF doc, which then tells him there is nothing they can do. he does work, hes a plumber he has done the social work thing before and they tell him...

check for clubing of the fingers and toes. if they are clubed that is a very big indicator.

get to a specialist... and stop letting them give him that stuff... they did it to me as well and it is a quick fix by docs that dont know much..... im 30 and im not doing to well... if ur in washington go to the childrens hospital in seatlle or marybridge.if not find the best hospital around ur...

he has applied for SSI and SSDI 4 times and they have denied him each time, they say that he can do a customer service job, because according to the doctors, he has a mild case and even though his PFT is at 46% and lower they say he can still work... when he first applied for it his PFT was at...

its a hard decision to make for us CFers... our lives are a bit complicated by this condition, so we are a bit more limited on our options, i know for me i just do what i like to do and even though my wife does not always agree on my work choice, she stands behind me no matter what. I think that...

hey so my husband has CF and he was diagnosed at 3 months old, and they told him that he wasnt supposed to live past 13, then when he made it to 13, he was told 18, so he went out and smoked 2 packs of cigarettes a day and did drugs, he is 30 now and he is definetly paying for it... his biggest...

so i have a question, does the cf return after you get the transplant? my husband has it, but they havent said anything about a transplant, but he has thought about it but was curious of how long it takes for the cf to return if that makes any sense at all..

thank you, the only thing that they do when we go to the hospital is give him a breathing treatment and send him on his way.... this has been done multiple times, im scared cuz his breathing was at 46% the last time he went in, and they told him to wait til obama care kicks in, gave him some...

thank you! but what if they wont do anything because he does not have medical?

how do i know what gene mutation i have? i was told i have a mild case of CF but was never informed of the gene mutation, so how do i figure that out???

I am in the same situation, I am a plumber and currently not working, but im not too sure what to do either. i was offered a lighter job where i wouldnt have to do much but there is so much dust and stuff all around, im not too sure if its better to stay a plumber or to be around so much dust...

my husbands lungs are at 46% and he is having the hardest time of his life right now, the doctors told him that there was pretty much nothing they can do... he is soo frustrated and sick, what do your doctors say? Im taking him to the hospital asap an hopefully there is something they can do...

hi, my name is rochelle and my husband has cf. im not too sure of the type that he has, but he does not have any medicine because he does not have medical insurance. he threw up the other day and there was quite a bit of blood in there, and he cannot breathe barely at all. He cant lay down or...