Recent content by jenjen2130

I get this pain all the time. I thought it was my pacrease and it ended up being my gallbladder. It is in the same area. The pain gets so bad. They want to remove it but I talkt o my cf doctor and he told me no more fatty foods. My brother on the other hand gets pancreatisis all the time...

I get this pain all the time. I thought it was my pacrease and it ended up being my gallbladder. It is in the same area. The pain gets so bad. They want to remove it but I talkt o my cf doctor and he told me no more fatty foods. My brother on the other hand gets pancreatisis all the time...

I would call you doctor and have them take a look. I have a port that I have had for almost 6 years. The first one actully flipped over in my chest. It could not be accessed or anything. I had to see the doctor and he put a new one in. Jennifer 32/w cf

I would call you doctor and have them take a look. I have a port that I have had for almost 6 years. The first one actully flipped over in my chest. It could not be accessed or anything. I had to see the doctor and he put a new one in. Jennifer 32/w cf

Caitlin, I live around that Boston area. I actually had an appoinment on Monday at MGH. There is a bug going around that is doing a number on us Cfs. What you need to do is call the your doctor explain to him or her that the head thing is gone but you chest just feels crappy. the doctor...

Caitlin, I live around that Boston area. I actually had an appoinment on Monday at MGH. There is a bug going around that is doing a number on us Cfs. What you need to do is call the your doctor explain to him or her that the head thing is gone but you chest just feels crappy. the doctor...

I have a port and I have had it since I was pregnat with my daughter. I have had it since 2000. So march will be 6 years. My port looks nothing like your Emily. It is flat to my skin and I hve it located in my right upper lobe right above my right breast. You can not ever see it. Just the...

I have a port and I have had it since I was pregnat with my daughter. I have had it since 2000. So march will be 6 years. My port looks nothing like your Emily. It is flat to my skin and I hve it located in my right upper lobe right above my right breast. You can not ever see it. Just the...

Well I have made a desison on the whole lobectomy. My doctor and I came to the conclusion that it would not be benefital for me becasue the cf is now in my middle lobe and upper lobe on the right side. So he said it would be a waste to do it. Jennifer 32/wf cf

Congrat Vanessa on your pregnacy. I have cf and I carried my daughter full term. She is now 5 years old. You can take your meds. The meds will not hurt the baby. What they might do , what they did for me was I had to see a High Risk OB. With a High Risk Ob you get more ultrasounds and...

When I stay at MGH in Boston. I always get a private room with fridge and the dietation comes in with free meal tickets for me and my family to use the resteraunt downstairs in the cafe. When i see my specialist he also puts all the Cfs in what they call CLEAN ROOMS. And we are not aloud...

I am from Lowell, Ma 30 miles from Boston. It is snowing here and very cold. Jennifer ( jenjen) for short.Because of all the Jennifers

I am also new to the web site. I am 33 w/CF I was diagnosed when I was 4 because they tested my brother who iwas 3 months at he time. Came out that we both had it. I am married and I have a beautiful daughter named Meghan. Jennifer

I have been on TOBI and I cannot tolerate it at all. I get white lesions on my tongue and mouth so. I cannot take TOBI but i do take Tobramycin injection as a neb instead of Tobi. Jennifer

My name is Jennifer 32 w/cf. I am having a CT scan on friday and the doctors are concidering me to have a rt upper lobectomy. Because that is where all my problems lie. I just wanted to know if someone could give me some input on this idea. I wanna talk to some pople that has had a...