Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Recent content by johngwisc

  1. J

    CFRD symptoms?

    A quick google search brought up this handy informational page: < <a target=new class=ftalternatingbarlinklarge href="http://www.diabetesuffolk.com/Complications/Cystic%20fibrosis.asp">http://www.diabetesuffolk.com/Complications/Cystic%20fibrosis.asp</a> > Of course, ask your doctor. Good luck.
  2. J

    Skateboarding

    Longboard skateboarding is on the top of my current list of things I'm loving. It's not terribly trick heavy, (although I suppose the real trick is finding roads where traffic isn't an issue), just a lot of hoofing it up hills and carving or bombing down. I find it is very much like...
  3. J

    New MS drug, maybe for cf?

    There is an article on this at: <a target=new class=ftalternatingbarlinklarge href="http://www.pharmacytimes.com/newsfeed.cfm?id=29109 ">http://www.pharmacytimes.com/newsfeed.cfm?id=29109 </a>
  4. J

    Traveling with the vest..tips?

    Depending upon where in MN you're coming home to, you may be able to contact the University CF clinic and arrange a loaner or possibly make arrangements for single daily. Also, prior to 9/11 and the changes in airline security, I flew with the 103 many times and simply made arrangements ahead...
  5. J

    prednisone

    I would echo the previous poster, regarding the need to wean off properly with the consult of your doctor. I believe that I reduced my dosage by cutting the daily dose 2.5 mgs, a week at a time. Generally, it is used to control inflamation directly related to infection. In short bursts, it...
  6. J

    prednisone

    I would add insulin dependence and cataracts to my list of effects from low dose/long term prednisone usage. Which, for me, was aprox 10 years at 10-20 mgs a day. I would also add, that for me, the benefits at the time fully outweighed the side effects. And after finally reducing my usage to...
  7. J

    rollerblading

    If you have a good place to skate, Rollerblading can be a really great way to exercise, (providing you dont break a wrist, of course). It can be low impact or high impact and as opposed to jogging can be easy on the joints. Also, it can be a great deal cheaper than getting into cycling...
  8. J

    PHYSIO VEST??

    Two kinds: <a target=new class=ftalternatingbarlinklarge href="http://www.sourcecf.com/medpulse.htm ">http://www.sourcecf.com/medpulse.htm </a> and the more popular, <a target=new class=ftalternatingbarlinklarge href="http://www.thevest.com/">http://www.thevest.com/</a>
  9. J

    Moving to Minesota

    Murgie, I would also recommend that you call the CF clinic at the U of M to contact the social worker. Contact information for the clinic can be found at: <a target=new class=ftalternatingbarlinklarge href="http://www.med.umn.edu/peds/pacc/cfcenter/home.html...
  10. J

    energy

    I rely on choosing something that I really enjoy doing to motivate, (ie. energize), myself. The drudgery of exercise equipment or a gymnasium, for me, aren't worth getting out of bed for. The pleasure of fresh snow for boarding or skiing in the winter or a dry sunny day for biking or roller...
  11. J

    Ports -- Just Curious

    Almost to a fault, I am very protective of my port. As long as I am conscious, I can't see myself giving up the control of dealing with my port. There are a litany of things I don't have control over in my life. My port access and maintanence is not on that list. I felt the same way about...
  12. J

    SSDI/Medicare

    It is automatic after 24 months. Despite the weightiness of the website, I would still direct you to: http://www.medicare.gov/ Good luck.
  13. J

    Advice Please

    My first reaction is to suggest that if your bf has cf, perhaps he should get a sperm count done to get a concrete determination. Nothing like science to ease one's mind. Good luck.
  14. J

    Advice Please

    My first reaction is to suggest that if your bf has cf, perhaps he should get a sperm count done to get a concrete determination. Nothing like science to ease one's mind. Good luck.
  15. J

    vitamin C

    I have been taking 8 grams of vitamin C a day (4 grams in the morning and 4 grams at night) for about 10-12 years. I found my bowel tolerance level and backed off my dosage slighty to where I wasn't causing diarrhea. After becoming aware of Dr. Linus Pauling's ( http://lpi.oregonstate.edu/ )...
Top