Recent content by jonah456

Hi, Martysmom and everyone else - Thanks for your good wishes. It's looking fairly definitive that my son does NOT have CF. We did the sweat test, which was negative (27 - not even borderline) and talked with the head of the local CF clinic about his genetic test results. He felt that the...

Hi, Martysmom and everyone else - Thanks for your good wishes. It's looking fairly definitive that my son does NOT have CF. We did the sweat test, which was negative (27 - not even borderline) and talked with the head of the local CF clinic about his genetic test results. He felt that the...

Hi, Martysmom and everyone else - <br /> <br />Thanks for your good wishes. It's looking fairly definitive that my son does NOT have CF. We did the sweat test, which was negative (27 - not even borderline) and talked with the head of the local CF clinic about his genetic test results. He...

Just call me Ms. Sticky Wheel... Thanks to all of propping me up with the knowledge that waiting two months to get a sweat test is NOT standard, I made some calls today and got my son's sweat test scheduled for Thursday. Yay! Sounds like his GI doc just hadn't faxed over the results of the...

Just call me Ms. Sticky Wheel... Thanks to all of propping me up with the knowledge that waiting two months to get a sweat test is NOT standard, I made some calls today and got my son's sweat test scheduled for Thursday. Yay! Sounds like his GI doc just hadn't faxed over the results of the...

Just call me Ms. Sticky Wheel... Thanks to all of propping me up with the knowledge that waiting two months to get a sweat test is NOT standard, I made some calls today and got my son's sweat test scheduled for Thursday. Yay! Sounds like his GI doc just hadn't faxed over the results of the...

Just call me Ms. Sticky Wheel... Thanks to all of propping me up with the knowledge that waiting two months to get a sweat test is NOT standard, I made some calls today and got my son's sweat test scheduled for Thursday. Yay! Sounds like his GI doc just hadn't faxed over the results of the...

Just call me Ms. Sticky Wheel... <br /> <br />Thanks to all of propping me up with the knowledge that waiting two months to get a sweat test is NOT standard, I made some calls today and got my son's sweat test scheduled for Thursday. Yay! Sounds like his GI doc just hadn't faxed over the...

Thank you so much for your reponses! I should clarify that his 'inconclusive' Ambry test just meant that they didn't find a definitive conclusion - i.e. 2 mutations. He has one mutation, hence the further testing. He does take enzymes, and gained weight immediately. He's never been FTT, but...

Thank you so much for your reponses! I should clarify that his 'inconclusive' Ambry test just meant that they didn't find a definitive conclusion - i.e. 2 mutations. He has one mutation, hence the further testing. He does take enzymes, and gained weight immediately. He's never been FTT, but...

Thank you so much for your reponses! I should clarify that his 'inconclusive' Ambry test just meant that they didn't find a definitive conclusion - i.e. 2 mutations. He has one mutation, hence the further testing. He does take enzymes, and gained weight immediately. He's never been FTT, but...

Thank you so much for your reponses! I should clarify that his 'inconclusive' Ambry test just meant that they didn't find a definitive conclusion - i.e. 2 mutations. He has one mutation, hence the further testing. He does take enzymes, and gained weight immediately. He's never been FTT, but...

Thank you so much for your reponses! I should clarify that his 'inconclusive' Ambry test just meant that they didn't find a definitive conclusion - i.e. 2 mutations. He has one mutation, hence the further testing. <br /> <br />He does take enzymes, and gained weight immediately. He's never...

Hi, all. We're new here. My 9yo son was diagnosed with pancreatic insufficiency in the fall, so we're trying to find what's causing it. We did a blood test, which was inconclusive for CF, so his doctor referred us to the CF clinic for a sweat test and further testing... and their first...

Hi, all. We're new here. My 9yo son was diagnosed with pancreatic insufficiency in the fall, so we're trying to find what's causing it. We did a blood test, which was inconclusive for CF, so his doctor referred us to the CF clinic for a sweat test and further testing... and their first...