Recent content by jono

Thanks for all of your suggestions and information Epona. Really appreciate that you've taken the time to look at my problems. I've already started reading your website - lots of interesting information there! I'm going on holidays next weekend for a couple of weeks. So I won't start...

Hi Epona, 1)Yes I have been tested for C.Diff and it came back negative 2)No, I didn't take any probiotics or fermented foods directly after the hospital admission. However, probiotics and increasing the fibre in my diet were the first two things the dietitian recommended when I started having...

Hi Epona, Thanks very much for the questions. I'll take all the help I can get at the moment! I am totally lost on what to do next. So any suggestions would be greatly appreciated. To answer your questions: 1) I have heard of both of the diets but I haven't tried either of them. I have tired...

Hi Everyone, Thanks for the renewed interest in my thread! I haven't posted here in a while but it seems like it's time for an update. Unfortunately there has been no improvement in my symptoms since my last post. In fact, I have actually declined further. I have been seeing the same GI...

Hi Simba15, I am having gut issues as well. Are you still getting benefit from the 2 new enzyme supplements (XymoZyme and Intenzyme Forte)? Also do you take any of the usual CF enzymes as well (e.g. Creon)?

Hi TerriC. Thanks for your post. Very sorry to hear about everything your daughter has been going through. Glad to hear she is finally starting to be able to manage her problem. Still sounds like very hard work though. I can certainly sympathize!

Hi MotherofCFBoy11yrs, Thanks again for your suggestions. I really appreciate it. I will definitely post my question on that website and see what feedback I get. If you do find that thread of the person who posted the question like mine please let me know. The Gallbladder has always been...

Thanks MotherofCFBoy11yrs. I'll order some Ventracid and see if it makes a difference for me.

Hi MotherofCFBoy11yrs, Thanks for the suggestion. Ventracid does look like an interesting product and it's good to see that it's helped your son. Was your son on any antacids / PPIs (omeprazole etc..) before starting the Ventracid? Also - What is the website for the German online pharmacy that...

Hi Little Lab, Everything you suggested was worth trying and definitely not too costly in misery or pain. I certainly don't regret giving any of your suggestions a go and I really appreciate that you took the time to read my post and comment in the first place. I haven't read the...

Hi everyone. For those who are interested here is an update on how I am going with my GI troubles: Following the advice of little lab and others in this thread I have tried reducing the amount of Movicol I take and adding in a stimulant laxative (Bisacodyl) and caffeine. Unfortunately...

Hi CyrilCrodius. I’ve found that doing an exercise called shoulder dislocations has really helped my posture. Check out this website for more info and a video http://stronglifts.com/shoulders-dislocations/ The trick is to use a wide grip to begin with and do the exercise slowly - concentrating...

Thanks for the feedback TreasureGoddess. I can relate to the clean out, x ray says I'm good to go, then I'm starting to back up again after a day or two. As a couple of other people have suggested, I will be increasing my enzymes. I'm also currently trialling Metoclopramide to help with...

Very sorry to hear about what your daughter is going though GlennyB. I definitely know how horrible the GI side of CF can be and it sounds like your daughter has it to the extreme. I am going to try what LittleLab has suggested - increase enzymes, try some ox bile tablets, wean myself of the...

Thanks Bill. I've sent you a PM with my email address.