Cystic Fibrosis Forum (EXP)

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Recent content by JosephinesMommy

  1. J

    Frustrated

    Again, thanks to everyone for the replies. After speaking with my husband I am even more irritated. He too believes that because she isn't having any "symptoms" that I am over reacting. I will definately INSIST on them teaching me CPT this next visit or I will look into switching clinics...
  2. J

    Frustrated

    Again, thanks to everyone for the replies. After speaking with my husband I am even more irritated. He too believes that because she isn't having any "symptoms" that I am over reacting. I will definately INSIST on them teaching me CPT this next visit or I will look into switching clinics...
  3. J

    Frustrated

    Again, thanks to everyone for the replies. After speaking with my husband I am even more irritated. He too believes that because she isn't having any "symptoms" that I am over reacting. I will definately INSIST on them teaching me CPT this next visit or I will look into switching clinics...
  4. J

    Frustrated

    Again, thanks to everyone for the replies. After speaking with my husband I am even more irritated. He too believes that because she isn't having any "symptoms" that I am over reacting. I will definately INSIST on them teaching me CPT this next visit or I will look into switching clinics...
  5. J

    Frustrated

    Again, thanks to everyone for the replies. After speaking with my husband I am even more irritated. He too believes that because she isn't having any "symptoms" that I am over reacting. I will definately INSIST on them teaching me CPT this next visit or I will look into switching clinics...
  6. J

    Frustrated

    Thank you to everyone. I think I am just going to have to get "aggressive" with my daughter's CF team and get the ball rolling. I know that Mother's guilt is neverending... but this would take the cake. I have brought up to them the thought that I would like CPT or whatever to be routine...
  7. J

    Frustrated

    Thank you to everyone. I think I am just going to have to get "aggressive" with my daughter's CF team and get the ball rolling. I know that Mother's guilt is neverending... but this would take the cake. I have brought up to them the thought that I would like CPT or whatever to be routine...
  8. J

    Frustrated

    Thank you to everyone. I think I am just going to have to get "aggressive" with my daughter's CF team and get the ball rolling. I know that Mother's guilt is neverending... but this would take the cake. I have brought up to them the thought that I would like CPT or whatever to be routine...
  9. J

    Frustrated

    Thank you to everyone. I think I am just going to have to get "aggressive" with my daughter's CF team and get the ball rolling. I know that Mother's guilt is neverending... but this would take the cake. I have brought up to them the thought that I would like CPT or whatever to be routine...
  10. J

    Frustrated

    Thank you to everyone. I think I am just going to have to get "aggressive" with my daughter's CF team and get the ball rolling. I know that Mother's guilt is neverending... but this would take the cake. <br /> <br />I have brought up to them the thought that I would like CPT or whatever to...
  11. J

    Frustrated

    So we have been very lucky to have a very "healthy" baby thus far. Yeah, she spent her first 17days in teh NICU after she had surgery on day four for her MI. 17 was a very short stay from what I have heard. BUT Josephine had elevated liver enzymes at around 1m of age. She took Ursodiol...
  12. J

    Frustrated

    So we have been very lucky to have a very "healthy" baby thus far. Yeah, she spent her first 17days in teh NICU after she had surgery on day four for her MI. 17 was a very short stay from what I have heard. BUT Josephine had elevated liver enzymes at around 1m of age. She took Ursodiol...
  13. J

    Frustrated

    So we have been very lucky to have a very "healthy" baby thus far. Yeah, she spent her first 17days in teh NICU after she had surgery on day four for her MI. 17 was a very short stay from what I have heard. BUT Josephine had elevated liver enzymes at around 1m of age. She took Ursodiol...
  14. J

    Frustrated

    So we have been very lucky to have a very "healthy" baby thus far. Yeah, she spent her first 17days in teh NICU after she had surgery on day four for her MI. 17 was a very short stay from what I have heard. BUT Josephine had elevated liver enzymes at around 1m of age. She took Ursodiol...
  15. J

    Frustrated

    So we have been very lucky to have a very "healthy" baby thus far. Yeah, she spent her first 17days in teh NICU after she had surgery on day four for her MI. 17 was a very short stay from what I have heard. BUT <br /> <br />Josephine had elevated liver enzymes at around 1m of age. She took...
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