Cystic Fibrosis Forum (EXP)

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Recent content by JustAndrea

  1. J

    Beyond the first year of a transplant ...

    I am about to hit my 3rd year post transplant. For the first year I was very careful to always wear a mask when around flowers, dirt, poop etc. I was always told the first year can be the hardest. After getting into my second year I slowly got more and more "daring". I do have a few plants that...
  2. J

    transplant questions

    My work-up took a few months but that was me taking it slow. Scheduling a few appointments each visit is the best way to get things done. The only things that have a particular time to wait would be vaccinations. You have to do a series of 2 or 3 hepatitis shots which you have to wait so many...
  3. J

    transplant questions

    My work-up took a few months but that was me taking it slow. Scheduling a few appointments each visit is the best way to get things done. The only things that have a particular time to wait would be vaccinations. You have to do a series of 2 or 3 hepatitis shots which you have to wait so many...
  4. J

    transplant questions

    My work-up took a few months but that was me taking it slow. Scheduling a few appointments each visit is the best way to get things done. The only things that have a particular time to wait would be vaccinations. You have to do a series of 2 or 3 hepatitis shots which you have to wait so many...
  5. J

    O Negative Blood and Transplant

    I have O negative blood and I just got my transplant about 6 weeks ago. I was pretty bad but got lucky because I was on the list for only 2 weeks. I know another person that was waiting for lungs and was also O negative and their wait was about 3 months. I got mine in Iowa at UIHC.
  6. J

    O Negative Blood and Transplant

    I have O negative blood and I just got my transplant about 6 weeks ago. I was pretty bad but got lucky because I was on the list for only 2 weeks. I know another person that was waiting for lungs and was also O negative and their wait was about 3 months. I got mine in Iowa at UIHC.
  7. J

    O Negative Blood and Transplant

    <BR>I have O negative blood and I just got my transplant about 6 weeks ago. I was pretty bad but got lucky because I was on the list for only 2 weeks. I know another person that was waiting for lungs and was also O negative and their wait was about 3 months. I got mine in Iowa at UIHC.
  8. J

    to those who worked PT while on SSDI

    I worked fulled time for about 9 years. I have owned my house (Mortgage) for about 6 years now. I have never been married so I have no back-up income. I guess since I was doing well, that didn't really scare me at all. This past year my health has declined and I would push myself to go to work...
  9. J

    to those who worked PT while on SSDI

    I worked fulled time for about 9 years. I have owned my house (Mortgage) for about 6 years now. I have never been married so I have no back-up income. I guess since I was doing well, that didn't really scare me at all. This past year my health has declined and I would push myself to go to work...
  10. J

    to those who worked PT while on SSDI

    I worked fulled time for about 9 years. I have owned my house (Mortgage) for about 6 years now. I have never been married so I have no back-up income. I guess since I was doing well, that didn't really scare me at all. This past year my health has declined and I would push myself to go to work...
  11. J

    Problems Sleeping with Oxygen

    I had the same problem when I started using o2 at night too. I would wake up with a bad headache. I started using my flonase and then right before I go to bed I use a saline spray (over the counter) and that seemed to help a lot. As far as getting comfortable, it will take awhile but you'll get...
  12. J

    Problems Sleeping with Oxygen

    I had the same problem when I started using o2 at night too. I would wake up with a bad headache. I started using my flonase and then right before I go to bed I use a saline spray (over the counter) and that seemed to help a lot. As far as getting comfortable, it will take awhile but you'll get...
  13. J

    Problems Sleeping with Oxygen

    I had the same problem when I started using o2 at night too. I would wake up with a bad headache. I started using my flonase and then right before I go to bed I use a saline spray (over the counter) and that seemed to help a lot. As far as getting comfortable, it will take awhile but you'll get...
  14. J

    BiPap Machine

    Please help! I have recently joined because I want to chat with people who really understand what I am going through. This hospital stay has left me so alone and frustrated. I am a 31 year old female with CF. I was diagnosed at 6 months (brother has CF so they tested me), my pfts are not so...
  15. J

    BiPap Machine

    Please help! I have recently joined because I want to chat with people who really understand what I am going through. This hospital stay has left me so alone and frustrated. I am a 31 year old female with CF. I was diagnosed at 6 months (brother has CF so they tested me), my pfts are not so...
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