Cystic Fibrosis Forum (EXP)

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Recent content by kaphi72

  1. K

    Another Cf documentary being aired on Oprah channel tomorow!

    it's really interesting, it is a canadian documentary. In case you miss it, I am pretty sure you'll find it on youtube. Hope you'll enjoy this as much as we did here in Canada. Eva was a great person.
  2. K

    Another Cf documentary being aired on Oprah channel tomorow!

    it's really interesting, it is a canadian documentary. In case you miss it, I am pretty sure you'll find it on youtube. Hope you'll enjoy this as much as we did here in Canada. Eva was a great person.
  3. K

    Can smell the bacteria......

    I can also smell it when I become more infected, the smell really is awful! My smell does come from my sinuses, I wash them twice a day and it helps a lot.
  4. K

    Can smell the bacteria......

    I can also smell it when I become more infected, the smell really is awful! My smell does come from my sinuses, I wash them twice a day and it helps a lot.
  5. K

    Effecacy of Kalydeco: Pancreatic sufficiency as an indicator?

    That would be great. I am basically PS, I do not need to take any enzyme whatsoever. Never had any problems gaing wait. I have always been on the heavy side of the scale for a CF, going up to 160 for a 5f7 - My lungs aren't in good shape - I am on a canadian lung transplant waiting list FEV1...
  6. K

    Effecacy of Kalydeco: Pancreatic sufficiency as an indicator?

    That would be great. I am basically PS, I do not need to take any enzyme whatsoever. Never had any problems gaing wait. I have always been on the heavy side of the scale for a CF, going up to 160 for a 5f7 - My lungs aren't in good shape - I am on a canadian lung transplant waiting list FEV1...
  7. K

    Cayston???

    Hi Julie, Cayston works very well for me. I have 4 sources of PA. PFT's were down to 26-30% and went back up to 48% because of Cayston, of course with exercice, rest and eating well. hope this helps.
  8. K

    Cayston???

    Hi Julie, Cayston works very well for me. I have 4 sources of PA. PFT's were down to 26-30% and went back up to 48% because of Cayston, of course with exercice, rest and eating well. hope this helps.
  9. K

    post transplant lifestyle

    Make sure he doesnt eat grapefruits. It can have an interaction with his medication
  10. K

    post transplant lifestyle

    Make sure he doesnt eat grapefruits. It can have an interaction with his medication
  11. K

    Is there a way to gain strength back and not need oxygen help wolst exercising?

    Hi there, from what I was told, the best thing to do is to exercice with an oxymeter. My clinic told me that your 02 value shouldn't go under 88%while doing your exercice. If not, a serious lack of 02 can damage your organs... heart and tissues. You can get an affordable oxymeter online if you...
  12. K

    Is there a way to gain strength back and not need oxygen help wolst exercising?

    Hi there, from what I was told, the best thing to do is to exercice with an oxymeter. My clinic told me that your 02 value shouldn't go under 88%while doing your exercice. If not, a serious lack of 02 can damage your organs... heart and tissues. You can get an affordable oxymeter online if you...
  13. K

    Heading back to 60+ FEV1 from 26.

    I was listed at 35% in canada, went down to 25% i went back up to 48% now currently at 45%. I've been listed for almost 11 months, waiting time where I am located will be 24+ months. I need o2 for sleep.
  14. K

    Heading back to 60+ FEV1 from 26.

    I was listed at 35% in canada, went down to 25% i went back up to 48% now currently at 45%. I've been listed for almost 11 months, waiting time where I am located will be 24+ months. I need o2 for sleep.
  15. K

    Heading back to 60+ FEV1 from 26.

    I am Canadian, we have to wait approx 24 months for a transplant, I have been waiting for 10 months now. I have also been very sick this past year or so, 48 % is faily recent, consider i've been feeling better for the past 3 months or so. Things are also different in Canada, you have to do your...
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