Recent content by katedids74

I am coming from a different view point, as I am not a mother of a CF child, but a CF person with a child. Growing up the absolute best thing my parents did for me was treat me normally. Yes I had medications, I had treatments and physical therapy but I was allowed to be normal and happy...

I am coming from a different view point, as I am not a mother of a CF child, but a CF person with a child. Growing up the absolute best thing my parents did for me was treat me normally. Yes I had medications, I had treatments and physical therapy but I was allowed to be normal and happy...

The 770/809 trial was stopped and they are revamping so to speak! Trials to start again soon I believe.

The 770/809 trial was stopped and they are revamping so to speak! Trials to start again soon I believe.

The 770/809 trial was stopped and they are revamping so to speak! Trials to start again soon I believe.

My story is most like everyone else that commented. It started in college for me as well and then was continuing to happen on a regular basis. The found where the bleed was in my lungs and went in through my groin and did a cauterization at maybe the age of 22, I am only ever coughed up blood...

My story is most like everyone else that commented. It started in college for me as well and then was continuing to happen on a regular basis. The found where the bleed was in my lungs and went in through my groin and did a cauterization at maybe the age of 22, I am only ever coughed up blood...

My story is most like everyone else that commented. It started in college for me as well and then was continuing to happen on a regular basis. The found where the bleed was in my lungs and went in through my groin and did a cauterization at maybe the age of 22, I am only ever coughed up blood...

PA does not even keep you from being in the study! Cepacia was one of the things that would keep you out, but not PA.

PA does not even keep you from being in the study! Cepacia was one of the things that would keep you out, but not PA.

PA does not even keep you from being in the study! Cepacia was one of the things that would keep you out, but not PA.

I am in the VX 770 trial at Hopkins and they doctors meet with the company all the time to figure out how to pay for this! The combo drug is the key and they are going to keep working on that. There are only about a 1,000 people that will benefit from this drug and it has cost millions like...

I am in the VX 770 trial at Hopkins and they doctors meet with the company all the time to figure out how to pay for this! The combo drug is the key and they are going to keep working on that. There are only about a 1,000 people that will benefit from this drug and it has cost millions like...

I am in the VX 770 trial at Hopkins and they doctors meet with the company all the time to figure out how to pay for this! The combo drug is the key and they are going to keep working on that. There are only about a 1,000 people that will benefit from this drug and it has cost millions like...

I am a 36yo female with CF and I would say No, Cf has not hindered my personal life. I do tease my husband that he only married me because he thought I was dying. 5 months into dating my husband I was diagnosed with burkholderia cepacia and three months later we got engaged. We have now been...