Recent content by Katina

What have you used for treatments if you dont mind me asking.My 8yr old daughter caltured it in Nov.and still has it.Im praying for you.thank you. Katina

My daughter I would say is doing good.No hospital stays,no namonia,on enzymes but not alot.I give her pediasure and or Instant breakfast.She is 47lbs and is 45" tall.So with her weight n heigth her bmi is good.

My daughter is now 8yrs old and cultured MRSA in her throat culture but because wasnt sick and wasnt told till her 2 month checkup in Jan.Dont know about Jan.cultures nobody called .What should I exspect?Should I be concerned?

My daughter now is 8yrs old and recently cultured MRSA in her sputum.Can anyone tell me what happens culturing this.The CF Clinic wasnt to concerned.She has never had a hospital stay for any cleanouts or anything.She has had tubes put in ears,they never fell out so after 3.5 yrs they had to go...

Could anyone tell me why soy formula isn't good. I called the cf doc. and he didn't say anything bad. Is it because of kids with a digestive problem? If she is allergic to milk base and could be lactose intolerant what would they perscribe? I think she is doing well. Since she has been off it a...

My ped. is one on one with my daughter's cf doc and they told her it was a good call. My daughter was just weighed and is 14.8 pounds. She has been on enfamil with iron with lipal and was allergic and only took half the enzymes they usually need and still has doubled over her birth weight in 5...

Does anyone have this mutation?We didn't go through ambry. genetics but another lab and they found it but in there registration for genes they olnly found one other person with this genetic mutation. Katina

My 5 moth old was diagnosed with cf at 5 weeks old. At 2 weeks we went for a check up and I brought it to there attention when she ate she sounds very respy in the back of her throat. They told me probably reflux. So her next appt. The same thing except she isn't spitting up so no med. Then at 5...

My 5 month old was diagnosed with RSV in the beginning of March. Her lungs stayed clear thank goodness. They said that she could have lingering efects of it for up to 3 months or so. Well now going on 2 moths she seems to be throwing up lots of mucus and has just started Zyrtec for allergies...

Hi, I am a mom of a now three month old with cf and a 3year old and 8 year old who have to have a sweat test Tue. 22. They have always been healthy but since our youngest was diagnosed with a new born screen they have to have it done. I seem to not be scared or anything about Saydie having cf...

How is your son doing. Does it seem to be a milder case. Saydee seems to have few digestive syptoms. I was talking to another parent whom has a son 20 w/cf 2 without and an18monthold w/cf and she says it seems that Saydee might have a milder case. Was there any cf in either side of your families...

My 2 month old has one of the F508 mutated genes and her sweat test came out positive. They did another blood work to check for the other cell for the next 150 or so other most common cells and nothing came up. So I asked them to further the tests so they are going to but they said she is 1 in...