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Hello everyone, today we received our genetics back. They did not find any mutation. So my lovely baby is not even a carrier. I cant tell how happy I am and feel sorry, that not all can get this kind of good news. But I can see that you are all strong and you dont let the CF to rule your life...
Our little one doesnt have a full stuffed nose. I just noticed a boogies, Maybe one in a day in his nose. Its not big, I can clean it easily, but its so so sticky. I use the saline spray on the cotton bud and take it out.
Its so silly that I live in this limbo. Im so scared he might not be...
Please, May I have a one more question? Did your kids as a babies, or Maybe even now, have very sticky boogies? When I clean my sons nose, its so sticky like a glue. When is on my fingers I can hardly divide them. I know its gross, but I would better ask :)
Thank you again for you replies
Thank you so much for your replies. Im. Very grateful for your opinions and kind words. I think that was what I needed. I just noticed how many mistakes I did in my previous post. But it was like 3 or 4 oclock in the morning and I was breastfeeding. I wont lie, you make me think a little bit...
Hello, Im looking for some answers or advice here. Im from Slovakian, tiny country in the midle of Europe. We have a son, that is almost 3 months old now. His newborn screening came back positive, first his IRT level was 98, on the 14th day it was 68. As I understood, the limit for the first...
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