Cystic Fibrosis Forum (EXP)

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Recent content by katlynnsmom

  1. K

    CF Doc. gives negative survival rate for 9 yr. old,Do I get second opinion??

    Hello, I do notice an improvement in her....she still has her coughing spells everyday. But she needs to do it to get that mucus up. She has been on the symbicort a few months now...and they put her on the hypertonic saline and Tobi. Which I feel has benefited her. She needed on it long ago...
  2. K

    CF Doc. gives negative survival rate for 9 yr. old,Do I get second opinion??

    Hello, I do notice an improvement in her....she still has her coughing spells everyday. But she needs to do it to get that mucus up. She has been on the symbicort a few months now...and they put her on the hypertonic saline and Tobi. Which I feel has benefited her. She needed on it long ago...
  3. K

    CF Doc. gives negative survival rate for 9 yr. old,Do I get second opinion??

    Hello, I do notice an improvement in her....she still has her coughing spells everyday. But she needs to do it to get that mucus up. She has been on the symbicort a few months now...and they put her on the hypertonic saline and Tobi. Which I feel has benefited her. She needed on it long ago...
  4. K

    CF Doc. gives negative survival rate for 9 yr. old,Do I get second opinion??

    Hello, I do notice an improvement in her....she still has her coughing spells everyday. But she needs to do it to get that mucus up. She has been on the symbicort a few months now...and they put her on the hypertonic saline and Tobi. Which I feel has benefited her. She needed on it long ago...
  5. K

    CF Doc. gives negative survival rate for 9 yr. old,Do I get second opinion??

    Hello, I do notice an improvement in her....she still has her coughing spells everyday. But she needs to do it to get that mucus up. She has been on the symbicort a few months now...and they put her on the hypertonic saline and Tobi. Which I feel has benefited her. She needed on it long ago...
  6. K

    CF Doc. gives negative survival rate for 9 yr. old,Do I get second opinion??

    Just to update Katlynn's progress...We went back to Birmingham..this time I was able to get a better outlook. I was able to talk to the Dr. without her in the room and better prepared. He said he thought she seemed to be doing better on the new med's . And did not feel she needed to stay for a...
  7. K

    CF Doc. gives negative survival rate for 9 yr. old,Do I get second opinion??

    Just to update Katlynn's progress...We went back to Birmingham..this time I was able to get a better outlook. I was able to talk to the Dr. without her in the room and better prepared. He said he thought she seemed to be doing better on the new med's . And did not feel she needed to stay for a...
  8. K

    CF Doc. gives negative survival rate for 9 yr. old,Do I get second opinion??

    Just to update Katlynn's progress...We went back to Birmingham..this time I was able to get a better outlook. I was able to talk to the Dr. without her in the room and better prepared. He said he thought she seemed to be doing better on the new med's . And did not feel she needed to stay for a...
  9. K

    CF Doc. gives negative survival rate for 9 yr. old,Do I get second opinion??

    Just to update Katlynn's progress...We went back to Birmingham..this time I was able to get a better outlook. I was able to talk to the Dr. without her in the room and better prepared. He said he thought she seemed to be doing better on the new med's . And did not feel she needed to stay for a...
  10. K

    CF Doc. gives negative survival rate for 9 yr. old,Do I get second opinion??

    Just to update Katlynn's progress...We went back to Birmingham..this time I was able to get a better outlook. I was able to talk to the Dr. without her in the room and better prepared. He said he thought she seemed to be doing better on the new med's . And did not feel she needed to stay for a...
  11. K

    CF Doc. gives negative survival rate for 9 yr. old,Do I get second opinion??

    Hello, Just to let you all know..the port replacement went well. Took a little over an hour and then she went to recovery for awhile. And went home the same day. She is doing good. Still a little sore..but up and around to her old self. Alot tougher than I would be... And to reply to...
  12. K

    CF Doc. gives negative survival rate for 9 yr. old,Do I get second opinion??

    Hello, Just to let you all know..the port replacement went well. Took a little over an hour and then she went to recovery for awhile. And went home the same day. She is doing good. Still a little sore..but up and around to her old self. Alot tougher than I would be... And to reply to...
  13. K

    CF Doc. gives negative survival rate for 9 yr. old,Do I get second opinion??

    Hello, Just to let you all know..the port replacement went well. Took a little over an hour and then she went to recovery for awhile. And went home the same day. She is doing good. Still a little sore..but up and around to her old self. Alot tougher than I would be... And to reply to...
  14. K

    CF Doc. gives negative survival rate for 9 yr. old,Do I get second opinion??

    Hello, Just to let you all know..the port replacement went well. Took a little over an hour and then she went to recovery for awhile. And went home the same day. She is doing good. Still a little sore..but up and around to her old self. Alot tougher than I would be... And to reply to...
  15. K

    CF Doc. gives negative survival rate for 9 yr. old,Do I get second opinion??

    Hello, <br /> Just to let you all know..the port replacement went well. Took a little over an hour and then she went to recovery for awhile. And went home the same day. She is doing good. Still a little sore..but up and around to her old self. Alot tougher than I would be... <br /> And to...
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