Recent content by Kay

Believe me if I could I would but I dropped 30 pounds in only a few months and I can't gain it back and now I really have to gain weight because I just got listed for a transplant and I am up there...number 5!

I have had a g-tube for about a month now and have had problems like no other. At first I couldn't tolerate the feeds so I have had to switch formulas 3 times but now I am doing well, but the rate is still pretty low I am only at 75 ml/hr. My biggest problem is that it won't stay down!! I...

I have a mic-key and I haven't had trouble keeping the connector in...I just twist it in reallly tight tape the tube to my stomach and let it go for the night.

I was wondering if anyone has gotten a g-tube and what problems they had at first. I just got mine and it popped out within the first 2 weeks because the site never healed. It just made a bigger hole and caused a lot of pain and now it is oozing (gross I know) and no one can figure out what to...

I applied for SSI as well but haven't heard back from them yet...I know I didn't get their disability form but they have something else that I am being evaluated for. I also got MassHealth, I don't know if this pertains to you but if you can find something similar it helps with the co-pays. We...

I had that problem where I just wasn't hungry and I felt fine...come to find out I was getting sick and thank goodness I went to my doc to check things out. We caught whatever it was before it turned into something worse. I would suggest at least trying to force things down even if it takes...

I have one of the worst cases I guess...or so I am told I have B-Delosia (not sure if that is the correct spelling). I caught it 2 years ago and have been slowly declining since. I am not sure how I got it considering I hardly ever pressed elevator buttons or anything else because my mom was...

I just started the saline treatmeant a few weeks ago while I was in for a clean out. Because it can make some people start coughing uncontrolably they had me on the pulse oxometer for the first few days. My O2 stat while I was taking it was 100% but dropped down to 96% when I stopped. I think...

Ok I must be the opposite of all of you I CAN'T gain the weight. It is just not happening for me and everyone is getting concerened. They are talking g-tube right now and I really don't think I need it. I eat non-stop but can't seem to put on the pounds. Does anyone have any suggestions...

Ok I must be the opposite of all of you I CAN'T gain the weight. It is just not happening for me and everyone is getting concerened. They are talking g-tube right now and I really don't think I need it. I eat non-stop but can't seem to put on the pounds. Does anyone have any suggestions...

Wow thanks everyone for sharing your experiences...some of them sounded like mine! I didn't mean to scare anyone but if you are having any pain and shortness of breath I would definately go check it out. I thought I almost had a third one but it ended up being a tented diaphram...strange I...

Wow thanks everyone for sharing your experiences...some of them sounded like mine! I didn't mean to scare anyone but if you are having any pain and shortness of breath I would definately go check it out. I thought I almost had a third one but it ended up being a tented diaphram...strange I...

I go to Children's but can't transfer to Brighams because I have Cepacia!! However those clowns are very scary!! I have Dr. Uluer and I LOVE him too!! I had Dr. Shiels but I didn't like her, she didn't have a very good bed side manner and I think that is one of the most important things esp...

I go to Children's but can't transfer to Brighams because I have Cepacia!! However those clowns are very scary!! I have Dr. Uluer and I LOVE him too!! I had Dr. Shiels but I didn't like her, she didn't have a very good bed side manner and I think that is one of the most important things esp...

I have a seperate Neb set up for each medication, but I use the same compressor. I don't take too many at one time but instead of boiling them once a week I just use a whole new set up. I wash them out after each use and they are labled with either tape or just a marker, and then when it looks...