Cystic Fibrosis Forum (EXP)

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Recent content by KeiraMomDad

  1. K

    Need help with supplements for an infant

    My doc has always told us to give the vitamax at a different feeding than the prevacid, since the prevacid can cause the vitamins to not absorb as well.
  2. K

    Need help with supplements for an infant

    My doc has always told us to give the vitamax at a different feeding than the prevacid, since the prevacid can cause the vitamins to not absorb as well.
  3. K

    Need help with supplements for an infant

    My doc has always told us to give the vitamax at a different feeding than the prevacid, since the prevacid can cause the vitamins to not absorb as well.
  4. K

    Adek

    One suggestion that I have is switch to VitaMax... my daughter took it much better because it had a better taste, we switched when she was a few weeks old because one of her nurses suggested it because of the taste.
  5. K

    Adek

    One suggestion that I have is switch to VitaMax... my daughter took it much better because it had a better taste, we switched when she was a few weeks old because one of her nurses suggested it because of the taste.
  6. K

    Adek

    One suggestion that I have is switch to VitaMax... my daughter took it much better because it had a better taste, we switched when she was a few weeks old because one of her nurses suggested it because of the taste.
  7. K

    Ultrase MT 20 enzymes

    I understand your frustration, my daughter is on Pancreacarb and they have not been approved yet. What I was told by our CF Clinic folks is that all the companies did get all the information in on time to the FDA and it is a backlog at the FDA that is holding it up. I was told they expect things...
  8. K

    Ultrase MT 20 enzymes

    I understand your frustration, my daughter is on Pancreacarb and they have not been approved yet. What I was told by our CF Clinic folks is that all the companies did get all the information in on time to the FDA and it is a backlog at the FDA that is holding it up. I was told they expect things...
  9. K

    Ultrase MT 20 enzymes

    I understand your frustration, my daughter is on Pancreacarb and they have not been approved yet. What I was told by our CF Clinic folks is that all the companies did get all the information in on time to the FDA and it is a backlog at the FDA that is holding it up. I was told they expect things...
  10. K

    Liver function and distal intestinal obstruction syndrome

    I am hoping that there may be some folks who have had experience with distal intestinal obstruction syndrome. My 3 and 1/2 year old daughter who was born with a meconium illeus has nwo developed DIOS. We have been trying to manage it with miralax and she is still getting constipated, it was...
  11. K

    Liver function and distal intestinal obstruction syndrome

    I am hoping that there may be some folks who have had experience with distal intestinal obstruction syndrome. My 3 and 1/2 year old daughter who was born with a meconium illeus has nwo developed DIOS. We have been trying to manage it with miralax and she is still getting constipated, it was...
  12. K

    Liver function and distal intestinal obstruction syndrome

    I am hoping that there may be some folks who have had experience with distal intestinal obstruction syndrome. My 3 and 1/2 year old daughter who was born with a meconium illeus has nwo developed DIOS. We have been trying to manage it with miralax and she is still getting constipated, it was...
  13. K

    Liver function and distal intestinal obstruction syndrome

    I am hoping that there may be some folks who have had experience with distal intestinal obstruction syndrome. My 3 and 1/2 year old daughter who was born with a meconium illeus has nwo developed DIOS. We have been trying to manage it with miralax and she is still getting constipated, it was...
  14. K

    Liver function and distal intestinal obstruction syndrome

    I am hoping that there may be some folks who have had experience with distal intestinal obstruction syndrome. My 3 and 1/2 year old daughter who was born with a meconium illeus has nwo developed DIOS. We have been trying to manage it with miralax and she is still getting constipated, it was...
  15. K

    Quick easy dinners for CF kids and their family

    My Daughter and Husband love this one.. I take Keibasa sausage and cut it up and put it in my rice cooker with the "sticky" long cooking rice add a can of tomatoes with onions and a dash of tabasco sauce and some crushed red chilli and let cook about 1/2 hour. Easy and tasty! you could add...
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