Cystic Fibrosis Forum (EXP)

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Recent content by KKN

  1. K

    Ambry CF gene test - now the wait begins

    Karenmichelle, the blood work was received by Ambry on April 1 and we got the results on April 26. Hang in there on the wait. The waiting was so hard. Thanks Mom2owen. The GI nurse called with results and she just said negative for mutations. She did not indicate any variants but at our next...
  2. K

    Ambry CF gene test - now the wait begins

    Karenmichelle, the blood work was received by Ambry on April 1 and we got the results on April 26. Hang in there on the wait. The waiting was so hard. Thanks Mom2owen. The GI nurse called with results and she just said negative for mutations. She did not indicate any variants but at our next...
  3. K

    Ambry CF gene test - now the wait begins

    Karenmichelle, the blood work was received by Ambry on April 1 and we got the results on April 26. Hang in there on the wait. The waiting was so hard. <br /> <br />Thanks Mom2owen. The GI nurse called with results and she just said negative for mutations. She did not indicate any variants but...
  4. K

    Two borderline sweat chloride tests

    Mistyjo, our daughter is pancreatic insufficient and had sweat test level of 38 on one arm and 41 on the other. It was a long wait for the genetic test but the test was negative. I read a study that found that borderline sweat test and having a symptom of CF results in about a 1 in 4 chance of...
  5. K

    Two borderline sweat chloride tests

    Mistyjo, our daughter is pancreatic insufficient and had sweat test level of 38 on one arm and 41 on the other. It was a long wait for the genetic test but the test was negative. I read a study that found that borderline sweat test and having a symptom of CF results in about a 1 in 4 chance of...
  6. K

    Two borderline sweat chloride tests

    Mistyjo, our daughter is pancreatic insufficient and had sweat test level of 38 on one arm and 41 on the other. It was a long wait for the genetic test but the test was negative. I read a study that found that borderline sweat test and having a symptom of CF results in about a 1 in 4 chance of...
  7. K

    Ambry CF gene test - now the wait begins

    I posted an update last week and I am not sure where it went. We received the results of our daughter's Ambry CF gene test last week and it was negative for mutations! I want to thank all of you who have responded to my questions and offered support. I appreciate it more that you know. We...
  8. K

    Ambry CF gene test - now the wait begins

    I posted an update last week and I am not sure where it went. We received the results of our daughter's Ambry CF gene test last week and it was negative for mutations! I want to thank all of you who have responded to my questions and offered support. I appreciate it more that you know. We...
  9. K

    Ambry CF gene test - now the wait begins

    I posted an update last week and I am not sure where it went. <br /> <br />We received the results of our daughter's Ambry CF gene test last week and it was negative for mutations! I want to thank all of you who have responded to my questions and offered support. I appreciate it more that...
  10. K

    New to site...waiting for answers

    I am right there with you Karenmichelle. We are also waiting for Ambry test results. It is so hard to not play "what if" as we wait for test results. Sorry your son is so sick! I wish I had some words of wisdom. All I can say is hang in there and know that this is a tremendous group here...
  11. K

    New to site...waiting for answers

    I am right there with you Karenmichelle. We are also waiting for Ambry test results. It is so hard to not play "what if" as we wait for test results. Sorry your son is so sick! I wish I had some words of wisdom. All I can say is hang in there and know that this is a tremendous group here...
  12. K

    New to site...waiting for answers

    I am right there with you Karenmichelle. We are also waiting for Ambry test results. It is so hard to not play "what if" as we wait for test results. Sorry your son is so sick! I wish I had some words of wisdom. All I can say is hang in there and know that this is a tremendous group here...
  13. K

    Ambry CF gene test - now the wait begins

    mom2owen (katy), I read where you recently got your Ambry test results back for your son. Can you tell me how long it took to get your results? Did you get any information after the first "panel" was run? Thanks for the support! KKN
  14. K

    Ambry CF gene test - now the wait begins

    mom2owen (katy), I read where you recently got your Ambry test results back for your son. Can you tell me how long it took to get your results? Did you get any information after the first "panel" was run? Thanks for the support! KKN
  15. K

    Ambry CF gene test - now the wait begins

    mom2owen (katy), <br /> <br />I read where you recently got your Ambry test results back for your son. Can you tell me how long it took to get your results? Did you get any information after the first "panel" was run? <br /> <br />Thanks for the support! <br /> <br />KKN
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