Cystic Fibrosis Forum (EXP)

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Recent content by kristal k

  1. K

    Friends announcing pregnancy

    Same here! I'm 31 and we have 3 new babies this year in our immediate family, Each visit I come home with baby fever... Then I snuggle up with my happy healthy dog, that will never leave home, talk back and ALWAYS loves snuggles and hugs and is always happy to see me. Plus when I wake up feeling...
  2. K

    Weight

    Hi! I'm 31, 5'4" and a proud 130lbs! I was having a hard time losing weight, especially when I get sick. I started on zenpep and got on the live 2 thrive program where they send me free aquadeks multi and a case of high calorie boost. I have a boost for breakfast usually eggs, ham, normal...
  3. K

    Gallbladder surgery

    yup I had the same problem. I now have a gen. practitioner that also is a pulmonary specialist, then I go into the cf clinic 1-2 times a yr to stay current on the new stuff. My gp found thyroid disease, blockage. gallbladder/appendix issues, and severe allergy to grass. I felt like a whole new...
  4. K

    joint pain?

    I have joint pain pretty bad all over. Usually flares up worse during an infection flare up (lung function currently around 30% & I am 31 yrs old) There's actually a really long name for this- "something" pulmonary osteo-arthropathy. This can also be an allergy symptom to something you are...
  5. K

    what to do when i get frustrated/sad/discouraged

    Same here..... My hardest feat was to stop working full time and apply for ssi. It took about 9 months to get approved, but they back pay to 3mnths after you stop working. When I made my health a priority, I gradually got better, and after about a yr was able to go back part-time. Just the...
  6. K

    New to all of this Looking for some help

    Congrats! so happy things turned out well for you, luck in the future!
  7. K

    What kind of job do you have?

    I was a retail manager before had to stop, had more fun delivering pizzas part-time after on ssi. It's a great workout and who isn't happy to see the pizza lady, plus I get to sing to the radio like nobody is listening! Recently started back to school to work on psych degree, now that I'm 31...
  8. K

    Have a little fun question for your worst day being hospitalized

    Colon surgery was definitely most painful, but scariest was waking up in the hosp. after being on a vent. for 5 days and seeing the look on my husbands face. Of course I went out on a weekend so my reg drs weren't around and the drs at e.r. told them I was gonna die. They convinced him to do a...
  9. K

    Encouragement to those struggling to improve lung function

    I get more out of the vest if I sit on the couch and put my head on the floor, or lay on my back with a couple pillows under my rear.
  10. K

    Encouragement to those struggling to improve lung function

    That's amazing! I was down to fev1 27 a yr ago, after a pretty bad bout. Last tested 5 months ago at 35 during an infection. I know my next test will be way better because of Yoga! I started a week ago when I notice more congestion and tiredness, now my husband is following me around watching to...
  11. K

    20 Weeks Pregnant and found out baby has DDF508 CF - What to expect, and what to do?

    hello; I am so sorry for the fear u must have been dealing with. I know that when the drs give a diagnosis and brief description, they don't realize how terrifying the ride home can be. I was diagnosed at age 1 after 3 different hospitals couldn't tell them why I wasn't getting any nutrients...
  12. K

    New to all of this Looking for some help

    HiJ First, congratulations on your pregnancy! I was diagnosed at age 1, because of my dietary issues. By the time I turned 12 I showed no symptoms other than a cold/bronchitis once or twice a yr, and if I watched my oily food intake showed no symptoms w/o using enzymes (fat soluble vitamins are...
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