Recent content by KristenLilysMom

1. Do you have CF? My daughter who is nearly 3 does - When were you diagnosed? June 2011 at 3 weeks old through the Newborn Screening Test 2. Are you on inhaled meds? Yes - If yes, which ones? Pulmazyme, TOBI, 5% Saline 3. How long does it take to do full treatment? 45 mins of meds plus 15 -...

We are the proud parents of a 10 month old girl with CF. We love her to bits and wouldn't change anything. We have always planned on having 2 children. Since Lily's diagnosis my husband has become firm that she will be our only child. His reasons are two fold 1. She deserves all of our time and...

We are the proud parents of a 10 month old girl with CF. We love her to bits and wouldn't change anything. We have always planned on having 2 children. Since Lily's diagnosis my husband has become firm that she will be our only child. His reasons are two fold 1. She deserves all of our time and...

Hello, I am in the process of transitioning my 10 month old to solid food. We seem to be at a weight standstill. Good cause she is not losing, but bad cause she isn't gaining either (still growing though). She LOVES Minigo's and pureed fruit but seems to dislike pureed meats and baby creal. Any...

Hello, I am in the process of transitioning my 10 month old to solid food. We seem to be at a weight standstill. Good cause she is not losing, but bad cause she isn't gaining either (still growing though). She LOVES Minigo's and pureed fruit but seems to dislike pureed meats and baby creal. Any...

I don't think reflux is the problem. She is on a PPI (Previcid 15 mg OD), she occasionally will vomit immidiately after a feed - usually if she starts coughing. The issue is this past week she has been vomiting 2-3 oz hours after eating. She doesn't cough during chest pt or during the neb but...

I don't think reflux is the problem. She is on a PPI (Previcid 15 mg OD), she occasionally will vomit immidiately after a feed - usually if she starts coughing. The issue is this past week she has been vomiting 2-3 oz hours after eating. She doesn't cough during chest pt or during the neb but...

Hello All, My daughter is 7.5 months old, we have been supplementing her with tube feeds for almost 2 months trying to get her into the 50th percentile. Recently, since colds and flus have really taken off (runny nose etc), she has been vomiting her feeds. There appears to be lots of mucous in...

Hello All, My daughter is 7.5 months old, we have been supplementing her with tube feeds for almost 2 months trying to get her into the 50th percentile. Recently, since colds and flus have really taken off (runny nose etc), she has been vomiting her feeds. There appears to be lots of mucous in...

I agree with what everyone here has said. Keep in mind that every person with CF expresses symptoms very differently, even if they have the same mutations. My daughter is 7 months old and has only been having "issues" recently with weight (I live in Ontario, Canada and they want all CFers to be...

I agree with what everyone here has said. Keep in mind that every person with CF expresses symptoms very differently, even if they have the same mutations. My daughter is 7 months old and has only been having "issues" recently with weight (I live in Ontario, Canada and they want all CFers to be...

We've been doing supplemental tube feeds for almost 2 weeks, the first week she gained nearly a pound and grew 1 cm. So all the anguish to decide to do it has been well worth it. Weigh in on thursday to see if we have hit her target weight and can discontinue to tube. Sdelorenzo - I agree with...

We've been doing supplemental tube feeds for almost 2 weeks, the first week she gained nearly a pound and grew 1 cm. So all the anguish to decide to do it has been well worth it. Weigh in on thursday to see if we have hit her target weight and can discontinue to tube. Sdelorenzo - I agree with...

<br>Hello all, We recently inserted a nasogastric tube into our 6 month old daughter. It was a very difficult decision but at 6 months she is only 14 lbs 2 oz and has not had any gain or growth in a month. She is at the top dose of enzymes, is on a PPI and is on thehighestcalorie formula...

<br>Hello all, We recently inserted a nasogastric tube into our 6 month old daughter. It was a very difficult decision but at 6 months she is only 14 lbs 2 oz and has not had any gain or growth in a month. She is at the top dose of enzymes, is on a PPI and is on thehighestcalorie formula...