Recent content by Laura47

I'll be 66 in December - diagnosed at 47.

MAC is mycobacterium avium complex. It's in the same family as tuberculosis, only it's not contagious.

Without a doubt, a 5. My doctor is not only my doctor, but he's my friend - and treats me like one. He doesn't rely on others, so if I need to contact the clinic, I contact him and he takes care of any issues/problems. He respects my knowledge of CF and my own body and never dictates what I...

Without a doubt, a 5. My doctor is not only my doctor, but he's my friend - and treats me like one. He doesn't rely on others, so if I need to contact the clinic, I contact him and he takes care of any issues/problems. He respects my knowledge of CF and my own body and never dictates what I...

I am so, so sorry for your loss. May you find peace and comfort in your memories - and in your daughter. My deepest sympathy, Laura

I am so, so sorry for your loss. May you find peace and comfort in your memories - and in your daughter. My deepest sympathy, Laura

Beth Sufian has CF and is a lawyer who specializes in disability law. She more-than-likely will be able to offer you assistance. You can contact her at: 800.622.0385 or: bsufian@usacfa.org Hope she can help you. Laura

I'm 64, will be eligible for Medicare in Dec. when I turn 65. I was diagnosed at 47. Are all of you aware of <em>CF Roundtable</em>? It's a quarterly newsletter written by adults for adults (although parents of CF children find it informative as well)that covers a focus topic each issue but...

I'm 64, will be eligible for Medicare in Dec. when I turn 65. I was diagnosed at 47. Are all of you aware of <em>CF Roundtable</em>? It's a quarterly newsletter written by adults for adults (although parents of CF children find it informative as well)that covers a focus topic each issue but...

It helps to "sandwich" them. That is, eat half your meal, take the AquAdek, then eat the rest of your meal. I had all kinds of problems until I tried this technique. Good luck!

It helps to "sandwich" them. That is, eat half your meal, take the AquAdek, then eat the rest of your meal. I had all kinds of problems until I tried this technique. Good luck!

Just for your information: There are those of us in our 60s, 70s and even an 80 year old gentleman out here!

Just for your information: There are those of us in our 60s, 70s and even an 80 year old gentleman out here!

CBAVD is caused by the 5T variant on the CFTR. I was the first person diagnosed with CF to have a homozygous 5T variant. That was back in 1995. Since that time, most (but not necessarily all) males with CBAVD have been diagnosed with mild cases of CF, even if CBAVD is the only symptom. Also...

CBAVD is caused by the 5T variant on the CFTR. I was the first person diagnosed with CF to have a homozygous 5T variant. That was back in 1995. Since that time, most (but not necessarily all) males with CBAVD have been diagnosed with mild cases of CF, even if CBAVD is the only symptom. Also...