Cystic Fibrosis Forum (EXP)

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Recent content by laurenwinn

  1. L

    Welcome Ambry Genetics

    Steven (Ambry) Hi My son passed his sweat test with flying colors (got a 7), so we were sent to a gastro specialist, who thinks genetic testing is rediculous, but that if I really feel the need to go that route then I need to see the CF clinic at the hospital (Children's Mercy in Kansas City)...
  2. L

    just got the news

    Hi I am sorry to hear about your family's diagnosis but relieved to see it is atypical! I was wondering if you ever got your daughters sweat test number? My son has a lot of respiratory infections and CHRONIC digestive/constipation problems with a rectal prolapse, and a surgery corrected...
  3. L

    just got the news

    Hi I am sorry to hear about your family's diagnosis but relieved to see it is atypical! I was wondering if you ever got your daughters sweat test number? My son has a lot of respiratory infections and CHRONIC digestive/constipation problems with a rectal prolapse, and a surgery corrected...
  4. L

    just got the news

    Hi I am sorry to hear about your family's diagnosis but relieved to see it is atypical! I was wondering if you ever got your daughters sweat test number? My son has a lot of respiratory infections and CHRONIC digestive/constipation problems with a rectal prolapse, and a surgery corrected...
  5. L

    just got the news

    Hi I am sorry to hear about your family's diagnosis but relieved to see it is atypical! I was wondering if you ever got your daughters sweat test number? My son has a lot of respiratory infections and CHRONIC digestive/constipation problems with a rectal prolapse, and a surgery corrected...
  6. L

    just got the news

    Hi <br />I am sorry to hear about your family's diagnosis but relieved to see it is atypical! I was wondering if you ever got your daughters sweat test number? My son has a lot of respiratory infections and CHRONIC digestive/constipation problems with a rectal prolapse, and a surgery corrected...
  7. L

    CF Doc. gives negative survival rate for 9 yr. old,Do I get second opinion??

    Hi there, I'm sorry to hear your having a hard time, but if the doctor has the nerve to say something like that in front of a child I would change hospitals for that reason alone. It can never hurt to get new opinions, and your limiting yourself by sticking to that one. Hope this helps a...
  8. L

    CF Doc. gives negative survival rate for 9 yr. old,Do I get second opinion??

    Hi there, I'm sorry to hear your having a hard time, but if the doctor has the nerve to say something like that in front of a child I would change hospitals for that reason alone. It can never hurt to get new opinions, and your limiting yourself by sticking to that one. Hope this helps a...
  9. L

    CF Doc. gives negative survival rate for 9 yr. old,Do I get second opinion??

    Hi there, I'm sorry to hear your having a hard time, but if the doctor has the nerve to say something like that in front of a child I would change hospitals for that reason alone. It can never hurt to get new opinions, and your limiting yourself by sticking to that one. Hope this helps a...
  10. L

    CF Doc. gives negative survival rate for 9 yr. old,Do I get second opinion??

    Hi there, I'm sorry to hear your having a hard time, but if the doctor has the nerve to say something like that in front of a child I would change hospitals for that reason alone. It can never hurt to get new opinions, and your limiting yourself by sticking to that one. Hope this helps a...
  11. L

    CF Doc. gives negative survival rate for 9 yr. old,Do I get second opinion??

    Hi there, <br />I'm sorry to hear your having a hard time, but if the doctor has the nerve to say something like that in front of a child I would change hospitals for that reason alone. It can never hurt to get new opinions, and your limiting yourself by sticking to that one. Hope this helps a...
  12. L

    Help please with my 3 year old son.

    Hi Everyone, I am totally new here. My son, Xander has a sweat test scheduled on September 25 and I am nerve wracked every moment until then. Let me elaborate a little, I know this sounds like everyone elses post but I guess I just think it might be a little comfort to get some responses. My...
  13. L

    Help please with my 3 year old son.

    Hi Everyone, I am totally new here. My son, Xander has a sweat test scheduled on September 25 and I am nerve wracked every moment until then. Let me elaborate a little, I know this sounds like everyone elses post but I guess I just think it might be a little comfort to get some responses. My...
  14. L

    Help please with my 3 year old son.

    Hi Everyone, I am totally new here. My son, Xander has a sweat test scheduled on September 25 and I am nerve wracked every moment until then. Let me elaborate a little, I know this sounds like everyone elses post but I guess I just think it might be a little comfort to get some responses. My...
  15. L

    Help please with my 3 year old son.

    Hi Everyone, I am totally new here. My son, Xander has a sweat test scheduled on September 25 and I am nerve wracked every moment until then. Let me elaborate a little, I know this sounds like everyone elses post but I guess I just think it might be a little comfort to get some responses. My...
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