Recent content by Laurie

Katie, I am so sorry to hear that Casey died. I feel so sad that he wasn't able to get a 2nd transplant in time. As I also suffer with CF I just think that now he doesn't have to suffer anymore and he is peacefully sleeping. The comfort that I find is that someday he will be resurrected to a...

I try to eat only healthy foods. I find that I gained more weight by eating healthy than I did when I ate chips and hamburgers. I gained 15 pounds in 4 months. I was down to 95 pounds and now I am at 110. I am still eating about 3000 calories a day to gain even more. I mix fresh pinnapple...

I received my acapella choice free when I was in the hospital. I know my respiratory therapist used to give me the flutter free too. You may want to ask the next time you are in the CF clinic. I like the acapella choice better than the flutter. Seems like I get a little more up. It also...

Pancrease MT10 - Digestion Advair Inhaler - Breathing Albuterol Inhaler - Breathing Pulmozyme - Nebulized - To loosen mucus in lungs Zithromax - Supposed to reduce inflamation in lungs Insulin Novolog - Diabetes Flonase - To reduce inflamation in nose from oxygen Oxygen Vitamin E Vitamin D...

Pancrease MT10 - Digestion Advair Inhaler - Breathing Albuterol Inhaler - Breathing Pulmozyme - Nebulized - To loosen mucus in lungs Zithromax - Supposed to reduce inflamation in lungs Insulin Novolog - Diabetes Flonase - To reduce inflamation in nose from oxygen Oxygen Vitamin E Vitamin D...

Jenn, Thanks for replying, I tried the sterile water humidifier but water started to bubble through the line and into my nose. Lincaire (the oxygen company) said that happens when the line is cold and there was nothing that could be done so I had to disconnect the humdifier. I will check into...

I live in Seattle so I go to the University of Washington Medical Center which has an Adult CF Center. I do not like the doctor, she is not sensitive to what I am going through, very cold. I would like to hear more about what other CF center doctors are treating you with? How is your CF, are...

Hello, I recently had a decline in my CF and was hospitalized and was put on oxygen 24/7. I am now able to take it off for a few hours during the day only if I am sitting down. I am struggling because it drys out my nose and makes it bleed and it hurts. Do you have any suggestions? I flush...

Hello, My name is Laurie and I would like to have a lung transplant. If you have had one, what hospital did you have it at? Did you have to move there and if so how long did you have to live there? How long did it take to get your transplant from the date you were listed? What was your...