Cystic Fibrosis Forum (EXP)

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Recent content by leapling

  1. L

    Generic Hyper-Sal

    Thanks for the welcome Autumn! <img src="i/expressions/face-icon-small-smile.gif" border="0"> It's nice to "meet" you too! I haven't found anyone else with either of the mutations that I have either...they are apparently very rare. Have you ever heard any details about your S945L? You think...
  2. L

    Generic Hyper-Sal

    I just started getting the generic version through the cf pharmacy and had to call the nurse to verify that the sodium chloride was the same as HyperSal. For some reason, I feel like it's not as strong...doesn't taste as salty and doesn't make me cough as hard or clear as much mucus. Maybe...
  3. L

    Pancreatic sufficient

    I am also pancreatic sufficient and at age 34 haven't had to take any enzymes to maintain my weight. I was diagnosed at age 12 and seem to have two uncommon gene mutations. I did have a case of acute pancreatitis last fall, and the doctors felt that it may have been caused by a blockage in...
  4. L

    Pancreatic sufficient

    I am also pancreatic sufficient and at age 34 haven't had to take any enzymes to maintain my weight. I was diagnosed at age 12 and seem to have two uncommon gene mutations. I did have a case of acute pancreatitis last fall, and the doctors felt that it may have been caused by a blockage in...
  5. L

    Cayston shortage???

    When do they expect the shortage to end?
  6. L

    Cayston shortage???

    When do they expect the shortage to end?
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