Cystic Fibrosis Forum (EXP)

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Recent content by Littlemiss

  1. L

    Help Australia Get Kalydeco approved!!

    Hi All, It has been a very long time since I've posted here, but I'm back today to ask a huge favour. Our application for federal government funding for Kalydeco has been deferred and we are running a social media campaign in the hopes of pushing our government to move faster. There is a...
  2. L

    eFlow mesh/heads

    No it's not! Good grief, you are being even more ripped off over there than we are here <img src="i/expressions/face-icon-small-sad.gif" border="0"> $350 for ONE mesh?!?! That is ridiculous. Does your insurance cover that?<br><br>Back to the drawing board for me I guess...<br>
  3. L

    eFlow mesh/heads

    No it's not! Good grief, you are being even more ripped off over there than we are here <img src="i/expressions/face-icon-small-sad.gif" border="0"> $350 for ONE mesh?!?! That is ridiculous. Does your insurance cover that?<br><br>Back to the drawing board for me I guess...<br>
  4. L

    eFlow mesh/heads

    No it's not! Good grief, you are being even more ripped off over there than we are here <img src="i/expressions/face-icon-small-sad.gif" border="0"> $350 for ONE mesh?!?! That is ridiculous. Does your insurance cover that?<br><br>Back to the drawing board for me I guess...<br>
  5. L

    eFlow mesh/heads

    Where do you all buy your mesh/head pieces for eFlow in the USA? There is only one supplier in Australia and they have a huge mark-up, I want to buy some and have them shipped here as our dollar is strong against the US dollar at the moment.<br>
  6. L

    eFlow mesh/heads

    Where do you all buy your mesh/head pieces for eFlow in the USA? There is only one supplier in Australia and they have a huge mark-up, I want to buy some and have them shipped here as our dollar is strong against the US dollar at the moment.<br>
  7. L

    eFlow mesh/heads

    Where do you all buy your mesh/head pieces for eFlow in the USA? There is only one supplier in Australia and they have a huge mark-up, I want to buy some and have them shipped here as our dollar is strong against the US dollar at the moment.<br>
  8. L

    Researching for my book on CF

    What's your home town in Aus? I'd be interested in your program, I don't tolerate HTS though..
  9. L

    Researching for my book on CF

    What's your home town in Aus? I'd be interested in your program, I don't tolerate HTS though..
  10. L

    Researching for my book on CF

    What's your home town in Aus? I'd be interested in your program, I don't tolerate HTS though..
  11. L

    Need an answer ASAP re: coughing blood

    Thanks! It's been a while for me and, well, coughing blood freaks out the best of us I suppose. Can't get through to my stupid clinic though, just when I need them, grrrr. I hope that's what it is.
  12. L

    Need an answer ASAP re: coughing blood

    Thanks! It's been a while for me and, well, coughing blood freaks out the best of us I suppose. Can't get through to my stupid clinic though, just when I need them, grrrr. I hope that's what it is.
  13. L

    Need an answer ASAP re: coughing blood

    Thanks! It's been a while for me and, well, coughing blood freaks out the best of us I suppose. Can't get through to my stupid clinic though, just when I need them, grrrr. I hope that's what it is.
  14. L

    Need an answer ASAP re: coughing blood

    I just coughed up a big chunk of blood, it was dark and clotty. I don't know what this means, I've coughed blood before, but it was bright red. This was different, I thought it was a chunky plug and was very surprised to find blood. Anyone know what this is? I called my clinic but I think...
  15. L

    Need an answer ASAP re: coughing blood

    I just coughed up a big chunk of blood, it was dark and clotty. I don't know what this means, I've coughed blood before, but it was bright red. This was different, I thought it was a chunky plug and was very surprised to find blood. Anyone know what this is? I called my clinic but I think...
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