Cystic Fibrosis Forum (EXP)

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Recent content by LondonFog214

  1. L

    Choosing a Center - CHOP vs duPont

    My kids were diagnosed this year they are 11 and 14. Long story. Look up my other posts if your interested. It has been a battle. We are at CHOP now and happy so far. We are with Dr. Rubenstein(pulmonology) and Dr. Mascarehnas(GI). Their nursing staff is great and my son was in for his 1st...
  2. L

    Choosing a Center - CHOP vs duPont

    My kids were diagnosed this year they are 11 and 14. Long story. Look up my other posts if your interested. It has been a battle. We are at CHOP now and happy so far. We are with Dr. Rubenstein(pulmonology) and Dr. Mascarehnas(GI). Their nursing staff is great and my son was in for his 1st...
  3. L

    Choosing a Center - CHOP vs duPont

    My kids were diagnosed this year they are 11 and 14. Long story. Look up my other posts if your interested. It has been a battle. We are at CHOP now and happy so far. We are with Dr. Rubenstein(pulmonology) and Dr. Mascarehnas(GI). Their nursing staff is great and my son was in for his 1st...
  4. L

    Welcome Ambry Genetics

    Could you tell me about my two children's mutations? They are 394delTT and L997F. Thank you. Mom of 11 y/o daughter and 14 y/o son with cf dx 2010 mutations 394delTT and L997F
  5. L

    Mom knew best I guess

    Thank you. They are doing somewhat better. My son has been out of the hospital and back at school with some new meds; pulmozyme,more prevacis, and zantac. Our daughter had a near miss with the hospital just as soon as our son got home but phew a close call but she is ok after a lot of cipro, cpt...
  6. L

    Mom knew best I guess

    Thank you. They are doing somewhat better. My son has been out of the hospital and back at school with some new meds; pulmozyme,more prevacis, and zantac. Our daughter had a near miss with the hospital just as soon as our son got home but phew a close call but she is ok after a lot of cipro, cpt...
  7. L

    Mom knew best I guess

    Thank you. They are doing somewhat better. My son has been out of the hospital and back at school with some new meds; pulmozyme,more prevacis, and zantac. Our daughter had a near miss with the hospital just as soon as our son got home but phew a close call but she is ok after a lot of cipro, cpt...
  8. L

    13 yr old daughter diagnosed with CF

    Dear Bubblegum, My 14 year-old son was diagnosed with CF this year after being hospitalized on emergent basis twice this year with pancreatitis. It took several months to get a difinitive diagnosis. He had some borderline issues. He has had some respiratory issues and a chronic cough with some...
  9. L

    13 yr old daughter diagnosed with CF

    Dear Bubblegum, My 14 year-old son was diagnosed with CF this year after being hospitalized on emergent basis twice this year with pancreatitis. It took several months to get a difinitive diagnosis. He had some borderline issues. He has had some respiratory issues and a chronic cough with some...
  10. L

    13 yr old daughter diagnosed with CF

    Dear Bubblegum, <br /> <br /> My 14 year-old son was diagnosed with CF this year after being hospitalized on emergent basis twice this year with pancreatitis. It took several months to get a difinitive diagnosis. He had some borderline issues. He has had some respiratory issues and a chronic...
  11. L

    YouTube Videos

    love the videos. My 14 yr old liked them. He wants a trio for xmas now. Keep up the good work.
  12. L

    YouTube Videos

    love the videos. My 14 yr old liked them. He wants a trio for xmas now. Keep up the good work.
  13. L

    YouTube Videos

    love the videos. My 14 yr old liked them. He wants a trio for xmas now. Keep up the good work. <br /> <br />
  14. L

    Mom knew best I guess

    In our Doctors we trust...At the beginning of this year my 14 y/o son had a series of acute pancreatitis which landed him in the hospital for about 2 months. He missed about the last 3rd of his 8th grade. He has a history of a chronic cough since age 18 mths, relux as an infant until 9 months...
  15. L

    Mom knew best I guess

    In our Doctors we trust...At the beginning of this year my 14 y/o son had a series of acute pancreatitis which landed him in the hospital for about 2 months. He missed about the last 3rd of his 8th grade. He has a history of a chronic cough since age 18 mths, relux as an infant until 9 months...
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