Recent content by LouLou

Market research opportunity: 1 on 1, 1 hour session talking about experience with elastomeric pumps (Example: Ambulatory elastomeric, Ambulatory electronic or large volume infusion pumps). Participant must have used one of these pumps within the last 6 months. Sessions will be held in...

Thank you Cardinal! I'm actually in a much better place than I was 4 years ago when I posted this thread. Much of my health success has been based on nutritional changes. 2008-2012 I was blasted with IV antibiotics often. In 2012 I started a supplement of aloe vera and 9 sea weeds that really...

I'm grateful and honored to announce that I will be speaking TONIGHT on an International Call and would like to invite you all to join in! I will speak to the importance of nutrition in my battle against Cystic Fibrosis and how I am am stronger than ever! (I'm on the far left in the picture -...

I'm interested! I'm 35 yo female with cf. We're a 2 for 1 as my 6 yo son has it too and he's very photogenic if you wanted him too :-) I was in the kalydeco trials and am succeeding with cf. we were featured in The Human Face of Big Data project as well as a big CFF two-day photoshoot so have...

Is it possible to add a walker manually like a team leader could on the old site or must every walker sign up for themselves?

you may want to post this in the family section as typically this section is people with cf who are seeking or are pregnant. I believe you can get the results from the CVS test but may require an amnio.

I think your post is interesting Enzo and I'm trying to understand the root off your question or discussion point. I would not consider "mass media" as a litmus test for what is normal. So you are probably totally normal. As far as masturbating, I think most people would agree that pleasure from...

Very interesting...my doctor says it is not transferred person to person (maybe the lymph node specific type?) - BUT everyone's reservation and my own certainly makes me concerned. I think I'll stay away until I can talk to my doctor about the situation and how it is really that different than...

Some of you may remember the tax videos a few of us made a few years ago. I'm all about deducting everything I can due to cf or business, etc. If you and your spouse have a business (self employeed) you can set up a self insured medical plan to deduct any unreimbursed medical expenses. This is...

The pro's of a port is managing it yourself and not having to be exposed to the hospital seen each time you need to do IVs. I access at home and get the drugs delivered and get rolling. I'm glad I have mine. I flush it every other month and after a few times using it with the help of home...

I don't think it applies since you are doing IVF. No need for the sperm to swim since the embryo is transferred. Pre-seed is a lubricant for sex that is more "sperm friendly" than say K-Y. Some cf women have speculated that it helped them get pregnant because it created a more natural lubricant...

I'm wondering what is going on with my body and why I am either producing these plugs or getting rid of old plugs. They do not seem very old and are light in color. Strange! I guess better out than in but still a little concerning. I do feel a bit victorious after clearing one though! Anyone go...

One of my very closest friend's daughter (age 4 now) had a lymph node swell so much it was visible on her neck. The area was also reddened. After much go round and various treatments (draining, antibiotics, etc.) it was managed at a big hospital under infectious disease and was found to be a...

If I had not dealt with hemoptysis I may have considered a homebirth due mostly to being germophobic of the hospital. Rightly so, my son and I picked up MRSA while in the hospital for delivery which reared its ugly head on day 11 of life for my son as mastitis. Unfortunately it's been in my...

This certainly seems fraudulent. I'm glad it didn't cost you more but still seems wrong!!