Recent content by mander31880

I have been on Orkambi for right at a month. There's days where I feel okay and I can get my physical things care of with no problem. Haven't felt wonderful yet. I am going through a bout like I did the second week where I'm so short of breath, it's uncomfortable to do anything. I am coughing...

I started taking Orkambi on 9-24. The only symptom I've had is some moderate shortness of breath and slight leg pain. That was only after the second dose. I'm 35 with a FEV of 42%. I was expecting some at least moderate symptoms. Is it possible they will come? And my fear is, if I don't...

I agree with a healthy high calorie diet but I have found that it's really difficult to put on weight with food alone. I try to lift heavy weights, especially legs. Squats, lounges, hamstring curls, etc. Also exercising your larger muscle groups requires more O2, building better lung function...

I agree with a healthy high calorie diet but I have found that it's really difficult to put on weight with food alone. I try to lift heavy weights, especially legs. Squats, lounges, hamstring curls, etc. Also exercising your larger muscle groups requires more O2, building better lung function...

Thanks to all. I ended up leaving after being in 8 days. Unfortunately my infection seemed to settle more in my lungs and I had to come back. Ronnie, thanks for the advice. I hadn't really looked at it that way. I'll definitely think of it that way next time.

Thanks to all. I ended up leaving after being in 8 days. Unfortunately my infection seemed to settle more in my lungs and I had to come back. Ronnie, thanks for the advice. I hadn't really looked at it that way. I'll definitely think of it that way next time.

Thanks to all. I ended up leaving after being in 8 days. Unfortunately my infection seemed to settle more in my lungs and I had to come back. Ronnie, thanks for the advice. I hadn't really looked at it that way. I'll definitely think of it that way next time.

Thanks to all. I ended up leaving after being in 8 days. Unfortunately my infection seemed to settle more in my lungs and I had to come back. Ronnie, thanks for the advice. I hadn't really looked at it that way. I'll definitely think of it that way next time.

Thanks to all. I ended up leaving after being in 8 days. Unfortunately my infection seemed to settle more in my lungs and I had to come back. Ronnie, thanks for the advice. I hadn't really looked at it that way. I'll definitely think of it that way next time.

I have ABPA and was on prednisone for about 8mos and still on the Sporanox. I have started taking in extra antioxidents, like the acai berry juice, Monavie, or there is a nutritional bar Usana makes called Ten-X. I'm not a crazy believer in Eastern medicine just because I can't ever really...

I have ABPA and was on prednisone for about 8mos and still on the Sporanox. I have started taking in extra antioxidents, like the acai berry juice, Monavie, or there is a nutritional bar Usana makes called Ten-X. I'm not a crazy believer in Eastern medicine just because I can't ever really...

I have ABPA and was on prednisone for about 8mos and still on the Sporanox. I have started taking in extra antioxidents, like the acai berry juice, Monavie, or there is a nutritional bar Usana makes called Ten-X. I'm not a crazy believer in Eastern medicine just because I can't ever really...

I have ABPA and was on prednisone for about 8mos and still on the Sporanox. I have started taking in extra antioxidents, like the acai berry juice, Monavie, or there is a nutritional bar Usana makes called Ten-X. I'm not a crazy believer in Eastern medicine just because I can't ever really...

I have ABPA and was on prednisone for about 8mos and still on the Sporanox. I have started taking in extra antioxidents, like the acai berry juice, Monavie, or there is a nutritional bar Usana makes called Ten-X. I'm not a crazy believer in Eastern medicine just because I can't ever really...

So, I've been in the hospital now for a week. My lungs are doing really good. I had caught a cold and was able to get in before it really attacked my lungs. My sinuses are still giving me problems and I can't talk. However, I went and did PT where I ran 2 miles on the treadmill. I feel like...