Recent content by Mantaray29

Thank you for yout answer Krysm3. How much sodium chloride do you take ?

She started Kalydeco in 2012 and headaches appeared one year and a half after. Since then they did not disappear. She has no sinus issues and she drinks a lot of water. But she still coughs every morning. She has been prescribed ibuprofen. It relieves pain but it bothers me that she takes it...

Thanks for your answer Ratatosk. Her annual bloodwork does not reflect any salt loss. She does not sweat much either. But the hospital doctor still prescribes to her 5g of salt every day. She told us that her urinanalysis does not show any excess of sodium chloride and thinks that an excess of...

Since my daughter started Kalydeco her sweat test has gone back to normal. However she is still being prescribed some sodium chloride. Is it also anybody's case ? I was wondering if it could be harmful, as she suffers from headaches.

My daughter aged 15 has been taking Kalydeco since 2012. She suffers from headaches very often, almost every two days. Aspirin and NSAID don't take away her pain. Does any of you suffer from headaches due to Kalydeco or Orkambi ? What do you take ? Thanks a lot for your help !