This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!
She is being seen at an approved c.f. clinic here in Sacramento, and her doctor is the head of the department, so I believe she is in good hands. She also sees her regular ped for vaccines and other things.
I'm glad to hear you have lived a long, full life. I hope my daughter will be as lucky...
Thank you guys for your caring words and sharing your stories. I'm going to try my best to stay positive and put on a brave face for my daughter's sake. I will always be there for her and love her with all my heart. I can already tell she's strong and she's going to be a fighter!
I'm not sure what class the second mutation is. All that we were told was that it's only been found in one other person, a 27 year old male with very mild symptoms. Apparently the only thing he had was swollen feet.
I'm glad to hear your son has no lung problems and glad his gi problems are...
Thanks for the info.
I was just worried the coughing would irritate her throat. But I guess it's the lungs that are affected by the c.f. not the throat. I just freak out whenever I hear her cough now.
And she probably does need the salt because she seems to sweat excessively, even at normal...
Thanks for your response that makes me feel a little better knowing that she still has a chance to be happy like your daughter. That's one of the things that worries me most after finding out this news. I know that the average lifespan is 40 years and that is a lot of time for them to make...
Yes we live in California and even though we keep the house at 72 she still sweats on her head a lot.
Right now I breastfeed and feed her straight from the breast, only giving her expressed milk when I'm not around. So I don't know how I would be able to mix the salt in a little at a time...
Hello everyone, my 11 week old daughter was recently diagnosed with c.f. and I had a question about the sweat test.
First a little background - at 2 1/2 weeks old our ped gave us the news that our daughter's prenatal screening had found she had 2 gene mutations (the d508 one and another that...
Hello everyone, my 11 week old daughter has just been diagnosed with c.f.. The doctors told us we need to start giving her 1/8th tsp of salt everyday. The problem is they told me to give it to her straight (wet my finger, dip it in salt then put it in her mouth a few times a day) and not to mix...
This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
By continuing to use this site, you are consenting to our use of cookies.