Recent content by maryiris

I am currently finishing up a run of meropenum and I too get those symptoms. Eat ALOT of yogurt; I buy the chewable acidophilus and pop 2 everytime i pass the bottle (about 4 or 5 times a day); and I drink a TON of water. My symptoms are way down and easily manageable now.

I'll be 53 this year; FEV 1 is 21% and I am NOT on oxygen :) I do everything I am supposed to do - wake up and do the meds, vest, acapello - START THE DAY. Then same routine at night. But I never let it stop me from doing anything. Up until 40 I would snow ski all the time - coughing...

Like the others, I too have pseudo and not a problem - the difference could very well be that the pseudo is resistant to the available meds.

Same thing here and I have pretty good insurance. If I want a portable one - buy it myself.

I do the pulmonzyme - nothing replaces it. I can tell when I have been off 3 days - everything gets really thick and hard to move again. The cost my pharmacy tab shows is somewhere around 5k per month. I pay $35 co-pay. I have GREAT insurance through CIGNA. Couldn't be happier with the way...

REST. I am on 2 week course right now. Went to Renn Fest with honey on Saturday; left feeling AWFUL! Went to bed when I got home that night and pretty much stayed in bed until Wednesday morning. Felt much better. Your body heals while you sleep. Cannot stress the importance of good sleep...

my understanding is that Tobi is primarily affective against pseudomonas and the drug is not prescribed until you grow pseudo because if that happens, you don't want a resistance to be there.

CF related arthritis can flare up when you have an infection flare up. I take Naproxen twice a day always - it helps some. But the joint pain itself is not uncommon in CF patients. 10 - 20% of CF patients suffer from CF related arthritis. When mine flares up and is so painful I can't function...

Wow!! What a crazy mess. I have the large health plan - my husband is employed by Visa. We are not even mentioning the medicare (I am disabled) so we don't end up with a mess - bills going back and forth with no one wanting to pay. HOWEVER - would the medicare as secondary pick up some of...

Wow!! What a crazy mess. I have the large health plan - my husband is employed by Visa. We are not even mentioning the medicare (I am disabled) so we don't end up with a mess - bills going back and forth with no one wanting to pay. HOWEVER - would the medicare as secondary pick up some of...

Wow!! What a crazy mess. I have the large health plan - my husband is employed by Visa. We are not even mentioning the medicare (I am disabled) so we don't end up with a mess - bills going back and forth with no one wanting to pay. HOWEVER - would the medicare as secondary pick up some of...

Wow!! What a crazy mess. I have the large health plan - my husband is employed by Visa. We are not even mentioning the medicare (I am disabled) so we don't end up with a mess - bills going back and forth with no one wanting to pay. HOWEVER - would the medicare as secondary pick up some of...

My husband is a dream husband. I was diagnosed with CF - then married the most amazing man I've ever met. He supports me - he sets up my meds every morning on my nightstand as he steps out at 5:30 am to go to work. He calls and wakes me when it's time. He does the vacuuming (the dust...

My husband is a dream husband. I was diagnosed with CF - then married the most amazing man I've ever met. He supports me - he sets up my meds every morning on my nightstand as he steps out at 5:30 am to go to work. He calls and wakes me when it's time. He does the vacuuming (the dust...

My husband has GREAT insurance through his company - so I have been lucky. However, he is hitting his 26th year there and can't retire because of my medical costs - would eat up everything we have saved. So just started looking into medicare - I don't even use it as secondary because I don't...