Recent content by melissa

Hi- I have a 15 year old daughter with cystic fibrosis as well as autism. Her psychiatrist has her on Abilify and her CF team wants to monitor that with the Trikafta. They said there isn't any research that it could be a problem, but they did say it is something we should keep in mind. I was...

I know this is years later but just saw this. I have a 15 year old with the same combination. She is doing great and actually doesn't have any pulmonary issues but does have the digestive. She started Trikafta a couple years ago and has done really well on it. Gained a lot of weight to where...

I forgot to mention- we did have an amnio that didn't work. (not enough sample) That is why I am skeptical about doing another amnio because of putting the baby at more risk. Melissa

Thanks for your replies. We are so worried about our baby being in the hospital for weeks at the beginning of his/her life. I have a few more questions.. 1. Do all babies with echogenic bowel have to have surgery when born? 2. Does the echogenic bowel ever go away? (the doctor we saw...

Hi everyone, My husband and I are expecting our first child. We should be super excited, but it seems like one difficulty after another. We recently found out we are both carriers of CF. (delta f 508 and y1092x) Needless, to say we are terrified. Today we had our ultrasound and they said...

Hi eveyone, I'm new here and my husband and I are expecting our first child. We also just found out we are carriers for CF. I have the common delta f508 and he has a rare type y1092x. I can't find any information on the two genes together, and was curious if any of you have or know of someone...