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So I just got back from my first clinic in Gainesville. It was overwhelming as it was my first clinic experience ever - but they were amazing. I learned so much and they were so incredibly thorough.
Good luck in February!
I am newly diagnosed in Jacksonville. I have seen Dr. Lascano one time so far, but am going for my first 'real' visit in January.
I really liked him - he's the director of the adult clinic, so I don't think you can get much better than that!
I know you posted this a while ago - but I would love to speak with you more. I have the same two mutations and was diagnosed at 36 (just a few weeks ago).
They are doing a sweat test next week, but I also feel as though it will come up negative - even though I have all the pulmonary symptoms...
Hi everyone - I am reaching out since it seems like resources for adults being diagnosed seem few and far between.
I am 36 years old and just recently have been tested for CF. We did the blood test first, which showed positive for 3849+10kbC>T AND Delta F508 mutations.
I have a sweat test...
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