Recent content by meteoras69

First, sorry for the TMI aspect of this post, but it's the only way I know to explain what's been going on..... My son is 3 and half. About four weeks ago, he began experiencing periods of upset stomach during the night. He has these episodes 2-3 times per week. He will wake up in the middle...

Hello, Our 3-year-old son was diagnosed with CF through newborn screening. He has DF508/DF508 mutations. He has been doing chest CPT since diagnosis (recently switched to the vest, twice a day for 30 minutes each day) and pulmozyme since 1 year of age. At our clinic they mentioned beginning...

My son has just turned three and uses a pari sidestream nebulizer cub set to take his hypersal. He uses a small size child mask, which we accidentally warped to the point we can't use it. Of course, we are on vacation when this happened. Any ideas about how we can get a replacement within a day...

Congratulations on your new baby! I also recommend the Avent sterilizer.....so much easier than boiling nebs, etc. Many babies with CF struggle to gain weight. I attempted the "Babywise" method for a few weeks and realized that due to my son's weight gain issues, pancreatic insufficiency, it...

Congratulations on your new baby! I also recommend the Avent sterilizer.....so much easier than boiling nebs, etc. Many babies with CF struggle to gain weight. I attempted the "Babywise" method for a few weeks and realized that due to my son's weight gain issues, pancreatic insufficiency, it...

My son is allergic to dairy, soy, and peanuts. No one else in either my husband's family or my family have any of these food allergies. He had a severe allergic reaction the first time he was exposed to any of these foods and needs an epipen in case of accidental exposure. We have been told...

My son is allergic to dairy, soy, and peanuts. No one else in either my husband's family or my family have any of these food allergies. He had a severe allergic reaction the first time he was exposed to any of these foods and needs an epipen in case of accidental exposure. We have been told...

Congratulations on the birth of your daughter. I am so sorry to hear about her diagnosis. Our son was born in May of 2009 and we were devastated to learn that he had CF when he was two weeks old. We were shocked and had no idea we were carriers. There is a lot to take in at first, but this...

Congratulations on the birth of your daughter. I am so sorry to hear about her diagnosis. Our son was born in May of 2009 and we were devastated to learn that he had CF when he was two weeks old. We were shocked and had no idea we were carriers. There is a lot to take in at first, but this...

Congratulations on the birth of your daughter. I am so sorry to hear about her diagnosis. Our son was born in May of 2009 and we were devastated to learn that he had CF when he was two weeks old. We were shocked and had no idea we were carriers. There is a lot to take in at first, but this...

<br>If you know that your child has two DF508 mutations, then there is no need for a sweat test; your child has CF. I was not clear from your original post if you knew that your child had only one mutation or two. If your has only one mutation that you know of, then further testing is needed. I...

<br>If you know that your child has two DF508 mutations, then there is no need for a sweat test; your child has CF. I was not clear from your original post if you knew that your child had only one mutation or two. If your has only one mutation that you know of, then further testing is needed. I...

<br>If you know that your child has two DF508 mutations, then there is no need for a sweat test; your child has CF. I was not clear from your original post if you knew that your child had only one mutation or two. If your has only one mutation that you know of, then further testing is needed. I...

<br>Hello, My 30-month-old son has been having some sinus issues for the past three months.  He has daily nasal drip (sometimes clear, sometimes green) and it sounds like his sinuses are stuffy--especially when he sleeps, he snores and snorts loudly throughout naps and throughout the night. ...

<br>Hello,My 30-month-old son has been having some sinus issues for the past three months. He has daily nasal drip (sometimes clear, sometimes green)and it sounds like his sinuses are stuffy--especially when he sleeps, he snores and snorts loudly throughout naps and throughout the night. This...