Cystic Fibrosis Forum (EXP)

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Recent content by Mistyme

  1. M

    Pseudomonas Aeruginosa Erradicated

    pseudomonas eradication What type/sources of water then? I normally keep a filtering dispenser in my fridge that I refill once or twice a day with tap water. I never drink from public water fountains but I do drink tap water at restaurants.
  2. M

    Pseudomonas Aeruginosa Erradicated

    pseudomonas eradication May I ask what changes you made that you feel helped you the most?
  3. M

    Pseudomonas Aeruginosa Erradicated

    I am a middle aged adult and have CRMS but I'm going through the eradication process at a good CF center so thought I'd respond. I cultured pseudomonas for the first time this year and 2 attempts using inhaled tobi and oral cipro failed. I opted for more aggressive treatment and it took 3...
  4. M

    Pancreatic sufficient, but losing weight

    I have respiratory symptoms now but didn't as a child other than some bad coughs, congested nose and reactive airways. As a young adult I started getting frequent respiratory infections- that slowly turned into getting bronchitis every time I get sick (bad colds, flu, etc). I wasn't diagnosed...
  5. M

    Pancreatic sufficient, but losing weight

    Hi Bygrace, I have the same mutations (and slightly lower sweat chloride) as your son and I am in my 40's now. My body goes back and forth between loose, normal and constipated. I need a few hundred extra calories a day too despite being PS-even more when I am very active or have a long day...
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