Cystic Fibrosis Forum (EXP)

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Recent content by mom23

  1. M

    Welcome Ambry Genetics

    My son was tested in January 2007 with the CF Amplified and was negative. There is still some speculation by Dr's that he has some type of atypical cf and I was wondering if there are more mutations found now and if it would be beneficial to do the testing again.
  2. M

    Excessive appetite

    My friends daughter seems to always be hungry, although taking in tons of calories a day. They are waiting to have more testing done, as she was in the high 30's on her sweat test. Is it normal for a 2 year old to be consuming an estimated 1800 calories a day, hardly gaining weight, and never...
  3. M

    Excessive appetite

    My friends daughter seems to always be hungry, although taking in tons of calories a day. They are waiting to have more testing done, as she was in the high 30's on her sweat test. Is it normal for a 2 year old to be consuming an estimated 1800 calories a day, hardly gaining weight, and never...
  4. M

    Excessive appetite

    My friends daughter seems to always be hungry, although taking in tons of calories a day. They are waiting to have more testing done, as she was in the high 30's on her sweat test. Is it normal for a 2 year old to be consuming an estimated 1800 calories a day, hardly gaining weight, and never...
  5. M

    could this be a TRUE diagnosis of CF?

    purplemartin, It sounds as though you are referring to my son, although I don't remember posting our situation on any other forums. If it is my son that you are referring to, hopefully I can clear up some confusion and not cause anymore anger or frustration to any parents out there with CF...
  6. M

    could this be a TRUE diagnosis of CF?

    purplemartin, It sounds as though you are referring to my son, although I don't remember posting our situation on any other forums. If it is my son that you are referring to, hopefully I can clear up some confusion and not cause anymore anger or frustration to any parents out there with CF...
  7. M

    could this be a TRUE diagnosis of CF?

    purplemartin, It sounds as though you are referring to my son, although I don't remember posting our situation on any other forums. If it is my son that you are referring to, hopefully I can clear up some confusion and not cause anymore anger or frustration to any parents out there with CF...
  8. M

    G-Button Problems No One Told Us About!

    My son has problems with granulation tissue, and a lot of the time it can be treated with the silver nitrate. As long they get it on the granulation tissue it isn't a problem. My son is 21 months, and the button seems to bother him more without treating with silver nitrate than with treating...
  9. M

    G-Button Problems No One Told Us About!

    My son has problems with granulation tissue, and a lot of the time it can be treated with the silver nitrate. As long they get it on the granulation tissue it isn't a problem. My son is 21 months, and the button seems to bother him more without treating with silver nitrate than with treating...
  10. M

    G-Button Problems No One Told Us About!

    My son has problems with granulation tissue, and a lot of the time it can be treated with the silver nitrate. As long they get it on the granulation tissue it isn't a problem. My son is 21 months, and the button seems to bother him more without treating with silver nitrate than with treating...
  11. M

    should we do more testing?

    Alyssa, his first sweat test was done at our local hospital, done on 1-5-06. That result was a 38. He was 9 months old at that test. The second sweat test was done at Sacred Heart Childrens Hospital and was done 3-30-06 when he was 12 months old. The result was a 12. We had a genetic...
  12. M

    should we do more testing?

    Alyssa, his first sweat test was done at our local hospital, done on 1-5-06. That result was a 38. He was 9 months old at that test. The second sweat test was done at Sacred Heart Childrens Hospital and was done 3-30-06 when he was 12 months old. The result was a 12. We had a genetic...
  13. M

    should we do more testing?

    Alyssa, his first sweat test was done at our local hospital, done on 1-5-06. That result was a 38. He was 9 months old at that test. The second sweat test was done at Sacred Heart Childrens Hospital and was done 3-30-06 when he was 12 months old. The result was a 12. We had a genetic...
  14. M

    should we do more testing?

    Our GI doc is at Childrens in Seattle, as we have been hospitalized there a few times. We are in Eastern Wash, but like Childrens in Seattle much better than Spokane. The CF doc in Spokane is fairly certain with having the neg sweat tests that he doesn't have it, but we want to make sure. Our...
  15. M

    should we do more testing?

    Our GI doc is at Childrens in Seattle, as we have been hospitalized there a few times. We are in Eastern Wash, but like Childrens in Seattle much better than Spokane. The CF doc in Spokane is fairly certain with having the neg sweat tests that he doesn't have it, but we want to make sure. Our...
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