Recent content by mom2cameron

We also use the Pari neb cups which we get from our CF pharmacy. Our insurance will pay for 1 every 6 months. I use an Avent bottle sterilizer because I burnt up a pot one day boiling the nebs! (Yes I know how to burn water lol) So after that scare I chose to spend the $20 and buy the bottle...

This is a very interesting question and I personally would like to hear some answers to the question too. My best friend was recently diagnosed with COPD after years of being sick all the time. I don't see her as much as I did before having my CF baby. She now lives an hour away and we see her...

This is a very interesting question and I personally would like to hear some answers to the question too. My best friend was recently diagnosed with COPD after years of being sick all the time. I don't see her as much as I did before having my CF baby. She now lives an hour away and we see her...

I have a 3 year old son with CF. Feel free to add me on Facebook. Just look for Lyndsi Mikel Owens.

I have a 3 year old son with CF. Feel free to add me on Facebook. Just look for Lyndsi Mikel Owens.

My son was tested at 4 weeks and his results were 105. We also had genetic blood testing done so we could know his 2nd mutation(his first one we found out on his newborn screening test). My 2 other kids did the sweat test and one came back real low (cant remember the number...something like 5 or...

My son was tested at 4 weeks and his results were 105. We also had genetic blood testing done so we could know his 2nd mutation(his first one we found out on his newborn screening test). My 2 other kids did the sweat test and one came back real low (cant remember the number...something like 5 or...

My son was tested at 4 weeks and his results were 105. We also had genetic blood testing done so we could know his 2nd mutation(his first one we found out on his newborn screening test). My 2 other kids did the sweat test and one came back real low (cant remember the number...something like 5 or...

My son does the same thing, hes 18 months old. I had him checked out at our last doctor visit because I thought he had an ear infection. He didn't. I've noticed also when his vest gets up to the 14hz he puts his head on the couch or tries to lay down...I guess its because it tickles his ears the...

My son does the same thing, hes 18 months old. I had him checked out at our last doctor visit because I thought he had an ear infection. He didn't. I've noticed also when his vest gets up to the 14hz he puts his head on the couch or tries to lay down...I guess its because it tickles his ears the...

My son does the same thing, hes 18 months old. I had him checked out at our last doctor visit because I thought he had an ear infection. He didn't. I've noticed also when his vest gets up to the 14hz he puts his head on the couch or tries to lay down...I guess its because it tickles his ears the...

Our CF doctor tells us if it last more that 7-10 days then we need to come in and see the pediatrician. They like to put him on antibiotics if it lasts that long. Which is nerve racking because any kind of normal cold usually last that long! We have been good and healthy all summer long. My 5...

Our CF doctor tells us if it last more that 7-10 days then we need to come in and see the pediatrician. They like to put him on antibiotics if it lasts that long. Which is nerve racking because any kind of normal cold usually last that long! We have been good and healthy all summer long. My 5...

Our CF doctor tells us if it last more that 7-10 days then we need to come in and see the pediatrician. They like to put him on antibiotics if it lasts that long. Which is nerve racking because any kind of normal cold usually last that long! We have been good and healthy all summer long. My 5...

We have 1 neb cup and fishy mask that we use with pulmozyme once per day. I put them in a bowl of soapy water for about 5 minutes then rinse good, shake out extra water and then set on paper towel to dry. I wash it out daily and every other day I boil it for 10 minutes. The fishy mask does not...