Cystic Fibrosis Forum (EXP)

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Recent content by mom2caseyafrica

  1. M

    Hearing loss

    My daughter has Auditory Neuropathy and mild hearing loss... I dont think anybody knows what caused it... I wonder if it could have been because of the antibiotics she was on a few weeks before she got sick. That would be a good question to speak with her doctors about i guess.
  2. M

    Hearing loss

    My daughter has Auditory Neuropathy and mild hearing loss... I dont think anybody knows what caused it... I wonder if it could have been because of the antibiotics she was on a few weeks before she got sick. That would be a good question to speak with her doctors about i guess.
  3. M

    Hearing loss

    My daughter has Auditory Neuropathy and mild hearing loss... I dont think anybody knows what caused it... I wonder if it could have been because of the antibiotics she was on a few weeks before she got sick. That would be a good question to speak with her doctors about i guess.
  4. M

    leaving the hospital

    So Casey is finally being discharged today. We have a lot of thihngs to follow up on though. PT, OT, speech, auditory, neuro, metabolic, infectious disease, and the list goes on. lol... I am happy to be able to say her cf dr has now classified her as having cftr Metabolic Disorder instead of cf...
  5. M

    leaving the hospital

    So Casey is finally being discharged today. We have a lot of thihngs to follow up on though. PT, OT, speech, auditory, neuro, metabolic, infectious disease, and the list goes on. lol... I am happy to be able to say her cf dr has now classified her as having cftr Metabolic Disorder instead of cf...
  6. M

    leaving the hospital

    So Casey is finally being discharged today. We have a lot of thihngs to follow up on though. PT, OT, speech, auditory, neuro, metabolic, infectious disease, and the list goes on. lol... I am happy to be able to say her cf dr has now classified her as having cftr Metabolic Disorder instead of cf...
  7. M

    Angry... need to vent...

    thanks, yes she is on medicaid. they do pay for gas for doc appts but i didnt know they paid for food during hospital stays... i will have to remember to ask about that for future reference
  8. M

    Angry... need to vent...

    thanks, yes she is on medicaid. they do pay for gas for doc appts but i didnt know they paid for food during hospital stays... i will have to remember to ask about that for future reference
  9. M

    Angry... need to vent...

    thanks, yes she is on medicaid. they do pay for gas for doc appts but i didnt know they paid for food during hospital stays... i will have to remember to ask about that for future reference
  10. M

    Angry... need to vent...

    I did get your message. Thank you. It did help to know that I was not the only one dealing with a lot of problems. Sorry i didnt message you back.... things have been a little busy. I hope things are going well for you
  11. M

    Angry... need to vent...

    I did get your message. Thank you. It did help to know that I was not the only one dealing with a lot of problems. Sorry i didnt message you back.... things have been a little busy. I hope things are going well for you
  12. M

    Angry... need to vent...

    I did get your message. Thank you. It did help to know that I was not the only one dealing with a lot of problems. Sorry i didnt message you back.... things have been a little busy. I hope things are going well for you
  13. M

    Angry... need to vent...

    We are working on getting into a housing program, but all programs take time. Also, while we are in the hospital, since i feel staying with my daughter in the hospital outweighs the benefit of working for 140 dollars this week(which most would go toward gas to drive back and forth) I wont be...
  14. M

    Angry... need to vent...

    We are working on getting into a housing program, but all programs take time. Also, while we are in the hospital, since i feel staying with my daughter in the hospital outweighs the benefit of working for 140 dollars this week(which most would go toward gas to drive back and forth) I wont be...
  15. M

    Angry... need to vent...

    We are working on getting into a housing program, but all programs take time. Also, while we are in the hospital, since i feel staying with my daughter in the hospital outweighs the benefit of working for 140 dollars this week(which most would go toward gas to drive back and forth) I wont be...
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