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Recent content by mom2JD

  1. M

    Kalydeco and Class IV Mutations

    Thanks for sharing. As my son has the same muation as you I am also very disappointed. All the best for you, anyway.
  2. M

    Insights from current 661 or 809 trials

    Usually participants are not allowed to discuss experiences in public while being in a trial... Here is ablog bysomeone on VX-661 which is really encouraging: http://www.cfgirlseyeofthetiger.com/blog/2012/03/20/Halfway-through-.aspx
  3. M

    Insights from current 661 or 809 trials

    Usually participants are not allowed to discuss experiences in public while being in a trial... Here is ablog bysomeone on VX-661 which is really encouraging: http://www.cfgirlseyeofthetiger.com/blog/2012/03/20/Halfway-through-.aspx
  4. M

    vx-661 recruiting

    amazing results here after 2 weeks http://www.cfgirlseyeofthetiger.com/blog/2012/03/20/Halfway-through-.aspx
  5. M

    vx-661 recruiting

    amazing results here after 2 weeks http://www.cfgirlseyeofthetiger.com/blog/2012/03/20/Halfway-through-.aspx
  6. M

    vertex770 and class IV

    My son has R347P / DF508 and he is completely pancreatic sufficient. Jenica: thanks for sharing this. I am also still hoping. But R117H has also a gating problem (reduced channel open time) so that this would be different from other class 4 mutations.
  7. M

    vertex770 and class IV

    My son has R347P / DF508 and he is completely pancreatic sufficient. Jenica: thanks for sharing this. I am also still hoping. But R117H has also a gating problem (reduced channel open time) so that this would be different from other class 4 mutations.
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