Recent content by msosnow

Well, my daughter just turned 12, she was diagnosed at 2, so the last 10 years... all just an experience, everyone is diffrent, in those first 4 years it took some time to get all the medications right, and quite a few hospital stays, with IV antibiotics and now at 12 she knows when she is not...

Hi, thank you so much for your advice. She has a bard power port placed under her skin right in middle of her breasts. At this point they cannot access or flush, they can feel and see where it is, they tried poking a few times moving it around and just could not get it. I do think that they use...

Just wondering if anyone has gone through this with their child? My 12 year old daughter had a power port placed in April 2012, in WI. So this month, was her first time really sick and coughing up blood so of course she needed IV antibiotics for 10 days. This is the first time since being placed...

My daughter who is 11yr. old just got out of hospital from 2 week tune up hers is back to 101% admission it was at 88%

My daughter who is 11yr. old just got out of hospital from 2 week tune up hers is back to 101% admission it was at 88%

Thank you everyone, I did check her levels this morning and I will check again 2 hours after dinner tonight. It was 77 which is good, they said anything under 125 is normal. I am doing a log , I have to do that once a week a reading before breakfast and then a reading 2 hours after dinner. I did...

Thank you everyone, I did check her levels this morning and I will check again 2 hours after dinner tonight. It was 77 which is good, they said anything under 125 is normal. I am doing a log , I have to do that once a week a reading before breakfast and then a reading 2 hours after dinner. I did...

Jonathan, THanks that is great information to know. The team of doctors were doing a lot of talking and I thought the same thing the best way to tell was the 2 hour OGTT. The thing was when in hospital they drew her lab levels early in the a.m. and they were too high to do that test so they...

Jonathan, THanks that is great information to know. The team of doctors were doing a lot of talking and I thought the same thing the best way to tell was the 2 hour OGTT. The thing was when in hospital they drew her lab levels early in the a.m. and they were too high to do that test so they...

Also, this time around they monitored her glucose levels, and from a few high readings they were ready to diagnosis her with CFRD? They did monitor her levels for 24 hrs.and they were not terrible, but I do not know much about CFRD, they gave me a great book to read about it, and once Endocrine...

Also, this time around they monitored her glucose levels, and from a few high readings they were ready to diagnosis her with CFRD? They did monitor her levels for 24 hrs.and they were not terrible, but I do not know much about CFRD, they gave me a great book to read about it, and once Endocrine...

Tom, Thanks you so much for you quick response! I do agree with you and I WILL learn as I did with the rest of her treatments! This site is awesome I love reading the forums just to hear the experience of others that are dealing with the same things. Have a good day! thanks again!

Tom, Thanks you so much for you quick response! I do agree with you and I WILL learn as I did with the rest of her treatments! This site is awesome I love reading the forums just to hear the experience of others that are dealing with the same things. Have a good day! thanks again!

I just came across this website and I think it’s great!I am the mother of a child with CF.Ihave an 11yr. daughter who has CF and just got out of the hospital recently. She was diagnosed at 2 yr. This time in the hospital was different because they decided to give her a port!Oct. of 2011 washer...

I just came across this website and I think it’s great!I am the mother of a child with CF.Ihave an 11yr. daughter who has CF and just got out of the hospital recently. She was diagnosed at 2 yr. This time in the hospital was different because they decided to give her a port!Oct. of 2011 washer...